Mei Mei ~
I didn't mean to diminish your suffering in any way, I simply wanted to make the point as a follow-up to Jan's comment that not all AN patients that undergo the Retrosigmoid Approach surgery end up with post-op headaches. Yes, we may be a statistical minority - but a noteworthy one. I believe that the surgeon's skill and precautions are a major factor in avoiding post-op headaches for AN surgical patients that undergo the 'retro' procedure. My neurosurgeon had over 30 years of AN removal experience and he assured me that he had practically eliminated the risk of post-op headaches in his 'retro' surgery patients. He was casually confident so I didn't give it much thought after that. His confidence proved to be well-founded. I did not experience post-op headaches, for which I'm very grateful. Because Jan and I had different surgeons and live far apart, I believe our lack of post-op headaches can be mostly attributed to our doctors skill and not sheer luck.
However, I realize that does nothing for you as you struggle with headaches. I just wanted to let you know that I sympathize with your distress over your headaches and that I don't believe undergoing the AN 'retro' surgery and experiencing intractable post-op headaches is axiomatic. Of course, I hope and pray that you can find relief from your headaches, soon.