Author Topic: Surgery Date at Hopkins, January 12  (Read 34305 times)

nteeman

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Re: Surgery Date at Hopkins, January 12
« Reply #45 on: January 11, 2010, 07:49:13 am »
Mei Mei,

Best of luck tomorrow.  It happens to be my birthday but I will make a point of sending some good thoughts your way.

Cheers,
Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

opp2

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Re: Surgery Date at Hopkins, January 12
« Reply #46 on: January 11, 2010, 08:16:09 am »
Good wishes Mei Mei.
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

Lynn Mc

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Re: Surgery Date at Hopkins, January 12
« Reply #47 on: January 11, 2010, 08:32:00 am »
Mei Mei,

Thoughts and prayers to a great recovery.  Thinking of you.

Lynn
Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

NancyMc

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Re: Surgery Date at Hopkins, January 12
« Reply #48 on: January 11, 2010, 08:33:36 am »
Good luck, Mei Mei.
Happy Birthday, Neal.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

moe

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Re: Surgery Date at Hopkins, January 12
« Reply #49 on: January 11, 2010, 08:59:20 am »
Mei Mei,
Surgery tomorrow. Prayers going your way for a successful surgery.
See you in "postie" land :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

jaylogs

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Re: Surgery Date at Hopkins, January 12
« Reply #50 on: January 12, 2010, 03:18:55 pm »
Good luck Mei Mei, thoughts and prayers are with you!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

leapyrtwins

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Re: Surgery Date at Hopkins, January 12
« Reply #51 on: January 12, 2010, 11:02:31 pm »
Mei Mei -

hope things went well today.

Happy Birthday, Neal.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #52 on: January 17, 2010, 05:19:28 pm »
Dear Friends,
I'm home from the hospital and am a postie now.   My AN was removed on Tuesday in a 9 hour surgery.   I got out of the ICU on Wed at noon and had an MRI at 2 pm.  So far no facial symptoms but they said to expect some in the next few weeks.   I lost most of my hearing in my AN right ear,  I think all...I can't hear anything on the phone at all right now.   The resident came in from the ENT team and said they were recommending the BAHA 3 to 8 mos down the road.  I'll have to start looking into that more heavily as I recuperate.   Right now I get in home PT for the next two to three weeks and have 24 hour care in home.  The docs and the nursing care at Hopkins were all great and I couldn't have asked for better support.  Well, I'm going to sit down to dinner with my dad and daughter.  Thanks for being there with me over the past months!

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

pjb

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Re: Surgery Date at Hopkins, January 12
« Reply #53 on: January 17, 2010, 06:04:42 pm »
So glad that you are home and sitting done eating that is a tremendous accomplishment in such a short time sounds like you are doing great and hope that it continues.

Best Wishes,

Pat
Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

moe

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Re: Surgery Date at Hopkins, January 12
« Reply #54 on: January 17, 2010, 09:06:59 pm »
Hi Mei Mei,
Welcome to postie land! If you experience facial symptoms, know that they will most likely be temporary. Lots of swelling going on in there. Are you on the lovely steroid medication?
Please follow the rules for post op brain surgery. Resting, walking, sleeping, drinking lots of fluids, repeat cycle.
And no bending over-this may cause headaches. Let us know how things continue to go. I'm so glad you have in home PT. That is great!
Are you having bad balance problems?
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

leapyrtwins

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Re: Surgery Date at Hopkins, January 12
« Reply #55 on: January 17, 2010, 09:31:53 pm »
Mei Mei.  You're back!  Good to see you  ;D

Glad to hear that things went well.

I'm not a resident, but I recommend the BAHA too.

When you're ready to think seriously about it, please don't hesitate to ask me anything.

Get lots of rest and don't overdo it.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Surgery Date at Hopkins, January 12
« Reply #56 on: January 18, 2010, 01:28:38 am »
Sounds like it went well, Mei Mei. Congratulations, you are a postie now. Rest and recover, you will soon be almost as good as new. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Nickittynic

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Re: Surgery Date at Hopkins, January 12
« Reply #57 on: January 18, 2010, 07:31:32 am »
Glad you're home and doing well! You're already hugely ahead of where I was at your time in recovery! Keep resting and don't do too much!
25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

lawmama

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Re: Surgery Date at Hopkins, January 12
« Reply #58 on: January 18, 2010, 07:35:15 am »
Mei Mei,

Congratulations on being a postie, and I am so glad to hear that you are doing so well!  Keep your spirits up and keep resting. 

Lyn
9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

Mei Mei

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Re: Surgery Date at Hopkins, January 12
« Reply #59 on: January 18, 2010, 10:52:59 am »
Thanks, everybody for your replies.   They are really heartwarming.  I had breakfast this morning and expect Home PT to come tomorrow.  The stitches come out on Wed at 9 and I shampoo on Fri.  Yay!    My daughter is going home today at 2 pm and I will miss her being here with me.  Everything went so smoothly with the Home Health Aide;  she took such good care of my Dad and the dog, Punky.  My mind is at peace at last. 

Talk to you all later!
Sincerely,
Mei Mei


1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh