Macedonia AN patient needs help

[Zoki Grncarovski]

I am 23 old boy from Macedonia , at 07.04.2007 in ukc Ljubljana ( Sloenija ) by Prof Dr Vinko Dolenc i was operated , and he told me that my cranial nerve is ok , and  after 6 - 8 mounth i will full recovery but it isnt , from the suergery past 18 mounth but my recovery is very slow ,i can move my lipss a leatle almost nothing , i am very disappointed and very unhappy . enyone who think that can help me with some : advice ,therapy or some exercises for fastest recovery . Soryy for my bad english and i hope that some gona help me

[Zoki Grncarovski]

Beafore the suergery i havent any problems like : headakes ,facial paralize or lost my balance .The first simptoms was : lost hearing from right ear and MRI shows LARGE TUMOR almost 5 cm and push the cranial nerve . The first weaks after the suergery i cant focus in one point but after few weaks it come back now i can focus in one point .With the balance i havent eye problems after the surgery . The DR told me that for facial therapy ist necesary , and after 6-8 mounts evrything be all right but form the day of my suegery past 18 mounts and i have very low progres with my face so if u have any usefulli information pls send me at my email address under my name.


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[Debbi]

Hi Zoki-

Sounds like you are I are at about the same time frame - I had surgery on 30 April 2008. I still have some facial problems, but have recovered to about 80%.  You might ask your surgeon for a referral to a facial therapist as this will definitely help to make sure that the nerves heal well.  There is also a great bit on the Bells Palsy website that might help you - here is the link:

http://www.bellspalsy.ws/exercise.htm

Sending you good thoughts.

Debbi (New Jersey)

[mk]

Hi Zoki,

there is a girl from Bulgaria here on the Forum, who had a very large AN and had her operation in Germany. She did experience some facial paralysis afterwards, and I know she has done a lot of research on this. Her user name here on the forum is Hrissy, she hasn't posted for some time, but I am sure she will reply if you send her a PM. She may have some information about medical centres in the area, since it is so close by.

Marianna

[hruss]

Hey Mariana! It was a sheer luck (or fate  ) to read this tread! Thank you for remembering me! I remember you all, be sure, and keeping in touch with some of you on facebook.com! I have to admit I am more active there (shame!)

So I am ready to help this Macedonian guy Zoki, if s/he has any questions.

My face is symetrical alredy, a year after the surgery but only when I stay calm. Once I open my mouth to speak it is visible for the rest there is something wrong. I am struggling with some synkenesis and have had a number of facial massages but I doubt they will help.

Zoki, I have a google group for AN patients and it is in Bulgarian. I guess it will be even easier for you to read it. I will be happy to see you there! 

Please as much as you want, I am totally ready to answer!

Bye By for now guys, running to lectures!
More soon....

hugs,
Hrissy