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Author Topic: AMAZING AND EXCITING NEWS!  (Read 8563 times)

lauralynn

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AMAZING AND EXCITING NEWS!
« on: August 31, 2009, 12:36:01 pm »
Hello my AN family.  I have amazing news to share with you!  I take pictures of my self once a week to compare my face from week to week.  Well last night after taking the pictures and thinking to myself how much I miss my smile, I practiced a closed smile in the mirror.  I couldn't believe what I saw!  The left corner of my mouth moved just a tiny bit, but it moved!  I called my kids in and they could see it too!  So exciting!  Great news huh?  Had to tell you all!

Love,
Laura Lynn  :)
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4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

Kaybo

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Re: AMAZING AND EXCITING NEWS!
« Reply #1 on: August 31, 2009, 12:38:27 pm »
YIIIPPPPEEE!!!!  Great news...can't wait for to go show that eye doctor!

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

another NY postie

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Re: AMAZING AND EXCITING NEWS!
« Reply #2 on: August 31, 2009, 12:41:10 pm »
Very cool and a good sign!!! :D  So happy for you!
Cheryl
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5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

NancyMc

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Re: AMAZING AND EXCITING NEWS!
« Reply #3 on: August 31, 2009, 12:42:13 pm »
Hip, hip, hooray!!!!!  I remember when that happened.  You could make rapid progress now.  I'll keep my fingers crossed.
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

lauralynn

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Re: AMAZING AND EXCITING NEWS!
« Reply #4 on: August 31, 2009, 12:51:16 pm »
Yeah, soon I will show that evil eye doctor!  I'm so excited you can't even imagine!!!!  Gonna go do more exercises now.  I will keep you posted as always. 

Love,
Laura Lynn :)
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4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

ppearl214

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Re: AMAZING AND EXCITING NEWS!
« Reply #5 on: August 31, 2009, 02:14:59 pm »
exciting news is an understatement, LauraLynn! :) You've been through so much and SO thrilled blessings, thoughts and prayers are becoming reality! What a nice feeling!

Congrats, congrats and please keep us updated!

xo
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

nancyann

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Re: AMAZING AND EXCITING NEWS!
« Reply #6 on: August 31, 2009, 03:37:22 pm »
WHOO HOO ! ! ! !   Wonderful news,  the best ! !
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Jim Scott

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Re: AMAZING AND EXCITING NEWS!
« Reply #7 on: August 31, 2009, 04:05:00 pm »
Laura Lynn ~

Congratulations on your not-so-small victory!  This is very exhilarating to read about.  You've made my day with this news.  Thanks for sharing it with your AN family.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Syl

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Re: AMAZING AND EXCITING NEWS!
« Reply #8 on: August 31, 2009, 05:03:28 pm »
Laura Lynn:

That's wonderful news. Thanks for sharing.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

CHD63

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Re: AMAZING AND EXCITING NEWS!
« Reply #9 on: August 31, 2009, 05:31:06 pm »
Laura Lynn .....

This is indeed exciting news!  You're going to show that ole doctor a thing or two yet!!!

Keep it up.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

mimoore

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Re: AMAZING AND EXCITING NEWS!
« Reply #10 on: August 31, 2009, 07:54:36 pm »
Yahoooooooooo for you!
A tiny movement is sooooo wonderful, keep it coming.
I remember it well. Hope is an awesome thing. Enjoy every minute of it!
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Jeanlea

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Re: AMAZING AND EXCITING NEWS!
« Reply #11 on: August 31, 2009, 07:56:35 pm »
Laura-Lynn,

That is wonderful news!  I'm so happy for you.  My smile started in the same way.  

Keep smiling!

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Helga

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Re: AMAZING AND EXCITING NEWS!
« Reply #12 on: August 31, 2009, 07:59:00 pm »
And it well get only better from here! Keep up the good work,
best wishes and good vibes in your direction, Helga
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Vivian B.

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Re: AMAZING AND EXCITING NEWS!
« Reply #13 on: August 31, 2009, 08:41:51 pm »
Hi Laura Lynn

Great news! How exciting. Thanks for sharing and keep up the smiles.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

sgerrard

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Re: AMAZING AND EXCITING NEWS!
« Reply #14 on: August 31, 2009, 10:17:25 pm »
Ha!  ;D

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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