Author Topic: Oregon & Washington State support group upcoming FALL 2009 meeting  (Read 3857 times)

4cm in Pacific Northwest

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Hey there all you out there in the Pacific Northwest,

Below are the details of the upcoming ANA PDX support group meeting so you can mark your calendars.


We have had a number of people come down from Washington State- to which we welcome with open arms. The Washingtonians still do not have their own group so we will certainly be encouraging any of them who have:  leadership skills, empathy for others and desire to get their own group started. In the meantime we hope you Washingtonians will all want to come to our meeting. (Some have carpooled down together- in the past)


PORTLAND, OREGON
SUPPORT GROUP MEETING INVITATION

Please plan to join us at the next meeting of your local Acoustic Neuroma Support Group.  We welcome you to learn about the latest treatment options, to network with other acoustic neuroma patients and find encouragement and support.


DATE/TIME:
Saturday, September 19, 2009
1:00 p.m.

LOCATION:
Providence St. Vincent Medical Center
2nd floor - Conference Room 6
9205 SW Barnes Rd.
Portland, OR 97225

TOPIC:
Caring and Sharing

Details will be posted here in the very near future.
http://www.anausa.org/scheduled_meetings.shtml

At least 3 of us went to the ANA symposium in Chicago. It was fantastic and there was so much new information to absorb... hopes are some of that will be shared too.

Hope you can come!

DHM :)

4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Jackie

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #1 on: August 21, 2009, 09:18:26 am »
Thanks DMH,

I plan on coming for sure!!!
Jackie

Looking forward to seeing everyone, and hearing the latest!!!
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

moe

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #2 on: August 21, 2009, 10:02:53 am »
Thanks DHM! I plan on being there, fingers crossed no mini crisis arises :o  :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

4cm in Pacific Northwest

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #3 on: September 12, 2009, 04:57:19 pm »
Reminder... one week from today... is our meeting.

Hope to see you-all there. There is a new leader, who has come forward  (YEAHHH!!!) :), who is starting a support group up there in Washington State. She will be present at the Oregon (PDX) meeting.

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

moe

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #4 on: September 13, 2009, 07:29:51 pm »
Ok still planning on being there. No crisis yet!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Debbi

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #5 on: September 16, 2009, 06:14:08 am »
Wish I could join you guys! 

by coincidence, I'll be in Beaverton for three days at the end of the month visiting my parents.  Love Oregon, and love the Willamette pinots...

Cheers, everyone!
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

4cm in Pacific Northwest

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #6 on: September 16, 2009, 11:59:46 am »
Hey we could still get together, for a coffee or something, with a few of us... and wear out knitted hats while you are in town. :)

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

rezski

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Re: Oregon & Washington State support group upcoming FALL 2009 meeting
« Reply #7 on: September 16, 2009, 02:08:42 pm »
I can't be there but I am looking forward to finally having a group in Washington.
Caroline
1.2 x .6 cm rt side AN diagnosed July 2005
Watching and waiting - not growing for now...Patient of Dr. Backous @ Virginia Mason
2012 8 x 5 mm @ Group Health - still WW