Author Topic: Possible re growth after radiation  (Read 3071 times)

Sueh

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Possible re growth after radiation
« on: August 09, 2015, 03:24:50 pm »
I am looking for information on surgeons who have experience doing surgery on previously radiated tumors. Information from anyone who has experienced re-growth would be appreciated.

CHD63

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Re: Possible re growth after radiation
« Reply #1 on: August 09, 2015, 03:50:42 pm »
Hi Sueh and welcome to this forum .....

Although I did not have regrowth from a radiated tumor, I did experience regrowth from surgery.  I decided since regrowth is very uncommon, I would seek out the best care I could find.  I went to Drs. Friedman and Schwartz at House Ear Clinic in LA for my second surgery, which was four years ago.  So far no further regrowth so I am a happy camper!

Dr. Rick Friedman (neuro-otolaryngologist) is now at USC/Keck Med Center and Dr. Marc Schwartz (neurosurgeon) is still at House.  Both of them are excellent, highly experienced AN surgeons.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Sueh

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Re: Possible re growth after radiation
« Reply #2 on: August 09, 2015, 08:36:04 pm »
Thanks Clarice. I'm trying to do research now so I can be ready if I do need surgery. And I know previously radiated tumors are "different". I would prefer a surgeon who had done one before. Next MRI is in October.

v357139

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Re: Possible re growth after radiation
« Reply #3 on: September 21, 2015, 07:43:59 pm »
I just read in the most recent newsletter that Dr Schwartz has done over 2000 ANs.  That's probably a good place to start as any.
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

mcrue

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Re: Possible re growth after radiation
« Reply #4 on: January 24, 2016, 02:34:33 am »
I read the same article on the latest ANA newsletter.

Very informative.
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan

 


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