Author Topic: Vision problems? Balance Problems? Hearing Problems?  (Read 1103 times)

tony

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Vision problems? Balance Problems? Hearing Problems?
« on: April 24, 2009, 08:50:20 am »
So lets run a marathon?

I almost don’t believe it myself....

Many of us on this list have some or all of the problems listed
above and I am sure know full well the daily challenges that they bring.
One of your fellow countrymen (country person?) has all of the above
and quite a few problems more besides. (she did have cancer in the teens?)
In May she will be attempting to run a 12mile marathon in order to raise
money to assist with the search for cures for NF2.
No Hearing, balance problems and double vision...12miles...
(I wish her well and while I will make a contribution – I just hope that she
doesn’t do herself any serious harm?)
Check out      diverbeck.blogspot.com
If you do feel you would want to support her – please do
but more than anything consider the following :
Firstly tell your friends, your family, your workmates even the papers?
Basically these things are about profile – I think someone with this level
of selfless determination should be supported – I hope you agree

Secondly not for a moment would I seek to diminish the problems we all face
-I live with most of them 24-7 myself – it’s seldom easy.
But I do consider that maybe if someone that wrecked, can and will, still,
make a contribution – then perhaps I should too ?

just a thought

Best Regards
Tony


Brendalu

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Re: Vision problems? Balance Problems? Hearing Problems?
« Reply #1 on: April 24, 2009, 03:17:08 pm »
Another amazing story of success after AN and with NF2!  I'm checking out the website.
Tony,
It is always good to read what you have written.  You are a truly amazing person.

Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

tony

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Re: Vision - Balance - and Hearing Problems? lets run 12 miles ??
« Reply #2 on: April 27, 2009, 12:05:45 pm »
I thought the quiet life might suit all - or any of us
apparently not
- I still dont believe one so challanged physically
would even try such a thing ?
anyone else fancy 12 miles for charity ?
Best Regards
Tony

leapyrtwins

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Re: Vision problems? Balance Problems? Hearing Problems?
« Reply #3 on: April 27, 2009, 03:43:35 pm »
Tony -

did she do this last year too?  I remember I made a contribution for someone at this same site.

I'll do so again this year.  Thanks for the information.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tony

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Re: Vision problems? Balance Problems? Hearing Problems?
« Reply #4 on: April 28, 2009, 12:40:55 am »
Thanks for your contibution
- it mainly goes to stateside NF2 folk
 and Yes - unreal - last year she did a walk (30ks ?)
This year its a half marathon
- only now days she gets double vision ?
Best Regards
Tony

JudyT

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Re: Vision problems? Balance Problems? Hearing Problems?
« Reply #5 on: May 02, 2009, 10:09:29 am »
WOW!!! What a great story.......God bless her!

Judy