Author Topic: Went hiking--off meds and no screaming migraine!  (Read 6228 times)

Captain Deb

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Went hiking--off meds and no screaming migraine!
« on: April 12, 2009, 04:36:50 pm »
Yippee for me that I went hiking and didn't come home with a headache!  I am having liver issues (a cyst) so I thought it would be prudent to give my system a rest so I titrated off my Topamax and Neurontin in the past couple of weeks.  I had migraines a week ago Saturday and and this past Friday, but decided to take a risk on this beautiful Easter Sunday and go hiking in the mountains. NO SCREAMING HEADACHE other than about a pain level 2 or 3.  It stopped a little while after I got back to the car.  This is about the first time since my surgery 6 years ago that I've been able to do any significant exercise without preventive meds.  Any time my heart rate gets up a bit, I get a slight headache, but this time it didn't escalate.  I hiked about 2 1/2 miles and it was up and down hill.  Maybe I'm getting better!

We'll see how I do tomorrow.  My pattern is to wake up with a headache the day after exerting myself.  Keeping my fingers and toes crossed!

No headaches!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
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NancyMc

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Re: Went hiking--off meds and no screaming migraine!
« Reply #1 on: April 12, 2009, 04:49:52 pm »
Fingers and toes crossed up here!
Sure wish I had an eye patch, though.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

EJTampa

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Re: Went hiking--off meds and no screaming migraine!
« Reply #2 on: April 12, 2009, 06:27:37 pm »
Way to go Capt!
 
I will hope and pray that your headaches do NOT return to haunt you!
 
Ernie
-1.3 X 0.8 cm AN in the right cerebellopontine angle extending into the internal auditory canal.
-Retrosigmoid Surgery with Dr. Bartels and Dr. Danner at Tampa General 3/5/2009.
-Had to cut hearing nerve to get "sticky" tumor, so SSD right side.

MAlegant

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Re: Went hiking--off meds and no screaming migraine!
« Reply #3 on: April 12, 2009, 06:53:00 pm »
What a great feeling!  Good for you.  Let's hope tomorrow brings you no reminder but the memories of the hike. 
Best,
Marci

3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

leapyrtwins

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Re: Went hiking--off meds and no screaming migraine!
« Reply #4 on: April 12, 2009, 08:37:35 pm »
I hiked about 2 1/2 miles and it was up and down hill.  Maybe I'm getting better!


Aye, Captain, we can only hope.  My fingers are crossed right along with you.

Here's to good thoughts!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Brendalu

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Re: Went hiking--off meds and no screaming migraine!
« Reply #5 on: April 13, 2009, 04:04:15 am »
Captain Deb!
Awesome news.  I'm saying a prayer that the headache monster doesn't visit today and you have clear "sailing" through the rest of the aches and pains too!  What a wonderful Easter treat to hike and be virtually pain free.  Way to go!!!!!!!!!!!!
Hugs,
Brendalu
Brenda Oberholtzer
AN surgery 7/28/05
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Chester Strunk, ENT

cin605

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Re: Went hiking--off meds and no screaming migraine!
« Reply #6 on: April 13, 2009, 10:32:19 am »
yay!
I am having the same issues wake up after a good day of trying to be normal w/ major headache.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: Went hiking--off meds and no screaming migraine!
« Reply #7 on: April 13, 2009, 02:36:21 pm »
Captain Deb ~

Great news!  I hope that by now, you're headache-free - or close to it. 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

GeorgiaMei

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Re: Went hiking--off meds and no screaming migraine!
« Reply #8 on: April 13, 2009, 03:49:38 pm »
Congratulations Captain!  That is fabulous and really big milestone!  I am so happy for you and hope you're doing okay today.  Karen
3.3cm x 2.6cm : Translab resect 3/08
Post-op epilepsy , multiple clots in brain sinuses
Chronic H/A, Facial paralysis, Imbalance, Vertigo
CN VIII removed-deaf in R ear
Received amazing care from Drs. Roberson and Colen at CEI/Stanford (www.californiaearinstitute.com)

Syl

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Re: Went hiking--off meds and no screaming migraine!
« Reply #9 on: April 13, 2009, 04:22:04 pm »
Capt Deb:

This is wonderful news alright. I share your joy.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

stoneaxe

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Re: Went hiking--off meds and no screaming migraine!
« Reply #10 on: April 13, 2009, 09:46:05 pm »
I hope today was headache free too Capt. Sounds like you could use a break. Makes me think of kicking the topomax to the curb myself. I'm going to be seeing my neuro on the 29th and I'll be telling him my headaches are more frequent and more intense...he'll likely want to up my dosage but i'm thinking of chucking it all and seeing what happens.

Hope yours continue to fade.
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
http://www.capecodbaychallenge.org

marjoryb

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Re: Went hiking--off meds and no screaming migraine!
« Reply #11 on: April 14, 2009, 07:43:04 am »
Congratulations - Lucky you.   After reading your messages for the past 3 years, it gives me hope that "headache free" is out there.  Great news.

marjoryb

HeadCase2

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Re: Went hiking--off meds and no screaming migraine!
« Reply #12 on: April 14, 2009, 10:17:56 am »
Capt,
  Very kewl.  Sounds like you're slowly but surely healing.   
Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

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