Author Topic: i may be on to smething  (Read 1658 times)


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i may be on to smething
« on: April 22, 2009, 06:17:27 am »
i have regular bouts with severe eye pain and all its lovely acoutriments. this last one was such a doozy that i went to yet another eye specialist to discuss a possible surgery for at least the chronic corneal erosion. although that is not a good choice for me he has put a contact lense "bandage on my eyeball.  and also put me on the restasis drops. i know it wont work for the referred pain in the top of my eyebal but it sure is a good start! he also told me about some docs in pittsburg who go in your brain again to wrap the nerves with an insulation to stop the mis-signals of neurotrophic pain. i think i want to talk to these folks even if it means more surgery. eye pain makes you not see too good and more than that it makes you mean as im sure many of you out there know. well just thought id share. ill keep you informed on the times when i can see enogh to type.   kerri

Jim Scott

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Re: i may be on to smething
« Reply #1 on: April 22, 2009, 03:27:58 pm »
Kerri ~

Thanks for the information - and you have my best wishes as you pursue (possible) surgery to correct some of your eye pain and vision deficits that must be terribly frustrating. 

4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.