Author Topic: On the roller coaster  (Read 2720 times)

JDJ925

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On the roller coaster
« on: February 15, 2006, 04:14:56 pm »
My surgeon’s scheduler called today to tell me I’m scheduled for surgery on 03/09/2006. Just 3 weeks from now! I feel like I’m on the part of the roller coaster that slowly takes you up to the pinnacle before the dead drop (click-click-click-click).

Now I’ve got to apply for a leave of absence from work. Get pre-approval for the surgery from Blue Cross. Arrange for disability. Train the guy who’s going to be doing my job while I’m out (and hope he doesn’t do it better than me). And try not to be distracted by that dead drop looming up ahead.

I have the most profound respect to all of you who have taken this ride and are willing to share your stories with us. Thank you. Your words do more than you may realize to help some of us go forward when we would just as soon sit this one out.

JD
JD
Translab surgery on 3/9/2006 removed 3.2cm AN right ear
Dr. Harry Van Loveren / Dr. Paul Boyev / Dr. John Susac
Tampa General Hospital

Kathleen_Mc

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Re: On the roller coaster
« Reply #1 on: February 15, 2006, 05:35:56 pm »
JD: I am so glad to be living in Canada, at least in terms of arrangements for health care. And thank heavens I don't have to train someone to cover for me while I'm sick and then have to worry about them taking my job......what a horrible thing....train them right and they might take your job.....set them up to fail and you might loose your job for not training them right! Don't let yourself get run down in the following weeks though, with all your preparing, you might get sick and have your surgery cancelled! Get your rest and eat right. I can clearly remember this time frame, thank heaven for me this past time it was only less than one weeks notice I got, the first time around was a 2 week wait from Dx. to O.R. and I was in shock and it wasn't so bad. Kathleen
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)

Larry

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Re: On the roller coaster
« Reply #2 on: February 15, 2006, 09:39:51 pm »
Right on Kathleen.

JD, you've made your decision, just get on with life and get the things done that are important to you in the next 3 weeks.
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

stein78

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Re: On the roller coaster
« Reply #3 on: February 16, 2006, 10:07:29 am »
Best of luck JD!

I like the 'click-click-click-click' reference of the roller coaster.  The best thing is, when the clicking stops and the downward plunge of the roller coaster happens, they put you to sleep.  :D  When you wake up, you are back on the upswing with no more of the dreaded 'click-click-click'.  Hang in there, you are on the home stretch.  The waiting for me was the worst part.
29 years old
2.5cm AN - left side
Removed May 10th, 2005
Dr. John Leonetti & Dr. Douglas Anderson
Loyola University Medical Center
Chicago, IL

millert

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Re: On the roller coaster
« Reply #4 on: February 16, 2006, 10:26:48 pm »
JDJ Didn't the surgeon's office get your approval before scheduling you for the surgery? Before I can see any of my specialists, they all have either the authorization or referral in hand. One last thing for you to worry about. Good luck!
Right side AN, removed Dec. 1998 Jackler;Pitts @UCSF,

ppearl214

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Re: On the roller coaster
« Reply #5 on: February 17, 2006, 08:52:49 am »
Hi JD,

Well, decision has been made, your putting your ducks all in a row and now, feel good about what you have decided and let's get you well.  Sending wishes that the next few weeks will be as stress-free as you can make it, keep yourself busy and know that you are doing what is best for you.

Sending wishes!
Phyllis
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Sanddollar

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Re: On the roller coaster
« Reply #6 on: February 20, 2006, 09:46:28 pm »
JD,

I LOVED the click-click-click-click reference.  Perfect!

Everything will be just fine - just stay focused on your positive outcome.  I will keep you in my thoughts and prayers.

Sanddollar
1cm x 2cm, Left side -Translab
Drs. Vrabec & Trask - Jan '06
Houston, TX
Excellent Results!!!

Pembo

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Re: On the roller coaster
« Reply #7 on: February 26, 2006, 10:09:55 am »
JD, The day after I got my surgery date we spent the day at Cedar Point, an amusement park and as dizzy as I was I rode the roller coasters! I figured if I had a brain tumor a little roller coaster couldn't hurt. LOL I also forced my husband into riding the newest coaster that flings you 100+mph. I wouldn't do it, but I told him I had to endure brain surgery, he had to ride that!

Hang on tight. I think the worst part of the surgery was the days leading up to it.
Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

matti

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Re: On the roller coaster
« Reply #8 on: February 26, 2006, 10:52:23 am »
The wait is the hardest part of the AN journey. Please know that you will be fine, you have countless thoughts and prayers coming your way and a ton of support from your AN buddies.

Speaking of roller coasters in a different sense, that is one thing I miss since my AN surgery. I was a huge roller coaster/amusement ride fanatic, but I am a terrified with all the bouncing around that something will come loose inside my head (other than the few screws that are loose already).

Take care and stay positive!

matti
3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50