Another newbie here. It's great to find your group, altho I must admit a bit nerve wracking learning about the possible side effects.
I was just diagnosed 2/09 with an AN 6 x 9mm. About 1.5 year ago I noticed hearing loss. Last Oct 08, I started having hemifacial spasms & finally made the appt. to get checked out. I must say, everything moved along quite smoothly w/appointments & UCSF was amazing in determining my diagnosis. Everyone including me feel I should take some kind of action.
I had my consults at UCSF w/Dr. Lustig & Dr. McDermott and am now completely undecided about what type of treatment I should have. Dr. Lustig (ENT) recommended surgery & Dr. McDermott (Nuerosurgeon) recommended GK. This is the "team" that would work on me. Has anyone else had experience with UCSF? I'm thinking of getting a 2nd opinion at Stanford. Hopefully it will clarify and not confuse.
I saw the US News 2008 Best Hospitals. It rated UCSF #4 in the nation, #1 on the west coast for Neurosurgery. Stanford is rated #7 nationally. But it does look like most of the members highly praise Stanford.
I'd also be interested in anyone else who has had facial spasms PRIOR to treatment and what their outcome is/was. The spasms are infrequent, approx 10-12x's a month & usually happen when I am working out or exerting myself physically. Should I stop my strenuous workouts? Is it making my situation worse? Dr. McDermott thought that since I am having facial spasms, there is the possibility the tumor could be on the facial nerve (definitely it's irritated), but of course, they won't know until they open me up. He was nice enough to say, they could open me up for surgical removal & if I pre-direct them, they could close me & then do GK.
So, while I'm trying to figure things out, just last week, I'm starting to feel mild pressure around my eye. It's what it feels like before a spasm only the spasm doesn't happen. I've looked in the mirror & I can't see a twitch. This pressure is constant & I'm starting to think my condition is worsening & need to take care of it sooner than later.
Anyways, thanks for being here!