Author Topic: Does anyone actually lose their mind because of tinnitus?  (Read 12233 times)

Sue

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #15 on: March 24, 2009, 05:11:29 pm »
Actually, on the serious side...I do believe you can lose your mind!  I have heard that there have been cases of suicide because of extreme tinnitus.  One of our newscasters in Portland, several years ago (actually I read her story and then noticed I had the smallest of hisses in my ear.... :o) had a major feedback in her headphone/earbud/whatever you call them, and it blew out her ear so bad that she has the worst case of tinnitus that OHSU in Portland has ever seen.  I remember the comparison that they wrote about in her story.  They said, "Imagine that you are sitting on your front porch reading your book, and two or three fire trucks pull up beside your house with their sirens blaring, and they never leave."  She has suffered terribly from her tinnitus.  She is on disability and she misses her work in TV very much.  Most of us are fortunate that it is an annoying problem, and a few of us are unlucky to be the ones who truly are "suffering from tinnitus".  My sympathies.  Try a loud fan in your bedroom.  It may help.

Unfortunately, once tinnitus sets in, it rarely leaves.   >:( :'(

Hang in there,

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


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4cm in Pacific Northwest

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #16 on: March 24, 2009, 07:18:22 pm »


Well Vincent Van Gogh... he went totally loopy ... but then he did not have people in the internet to to chat with and gain support...

Who knows if he had an acoustic neuroma or not??? :-\

One theory was his tinnitus was caused by lead poisoning being that his artworks were loaded with lead paint. He was the eccentric artist who sent his ear to his girlfriend... so there is one example who lost it...

There was an entire expressionist movement based on his work. To think that he may not have been just expressing himself but painting what he actually saw...

Hang in there ...

DHM

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Keri

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #17 on: March 24, 2009, 07:34:38 pm »
Hello,
My tinnitus has gotten better post op (still there a bit).  I had translab 8 weeks ago.

I hope all gets better and improves for you soon.

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Sue

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #18 on: March 24, 2009, 07:51:42 pm »
This is interesting.  You never know what's on the Internet!  Famous people with tinnitus.



http://members.fortunecity.com/nrbq1/tinnitus.html

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

moe

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #19 on: March 24, 2009, 10:25:44 pm »
Quote

I often wear an earplug:
••When my husband unloads the dishwasher


Your husband empties the dishwasher? You're lucky.......

Seriously, my tinnitus is probably not as bad as yours. Mine is a  high pitch squeal, 24/7,  (used to be a scream) on a deaf ear  and that is just NOT FAIR.
It is a daily challenge. I'm able to sleep through it, thank GOD.
And as I've said many times low dose xanax helps tone it down. Gotta go to a shrink, though.
Maureen
« Last Edit: March 24, 2009, 11:00:55 pm by sgerrard »
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

DLM4me

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #20 on: March 24, 2009, 11:43:57 pm »
Quote

I often wear an earplug:
••When my husband unloads the dishwasher


Your husband empties the dishwasher? You're lucky.......
I'd show any man the door if he thought he was above doing housework.  Sorry, but being born with testicles is simply NOT a good enough reason to exempt a person from doing housework.

But back to tinnitus...I have Xanax (I use it for sleep), and have tried over the past month or so using a low dose during the day for the tinnitus...but it didn't help.  At all.  I wish it would!


Middle fossa craniotomy 04/08/09, Drs Brackmann, Schwartz, et al, St Vincent/HEI in Los Angeles.

cindyj

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #21 on: March 25, 2009, 05:46:57 am »
...so quiet in the AN ear, yet SO loud...

Cindy

(my husband washes our dishes by hand every night, can't seem to get him interested in a vacuum cleaner, however :D)
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

moe

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #22 on: March 25, 2009, 08:05:40 am »
DLH4me,
Sorry the xanax didn't work for you. Like I said, it toned it down from a scream to a screech, so it's better than nothing!
OOOOHHHHHH I hit a nerve with the dishwasher, didn't I????? :D
What can I say-my husband was the last of 4 boys and the best behaved, so he was well......spoiled. I blame his mother.
You can't teach an old dog new tricks,you know?
He's a good man though, so that counts for something.
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

cin605

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #23 on: March 25, 2009, 09:02:10 am »
Does anyone actually lose what???? ;D
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Crazycat

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #24 on: March 25, 2009, 01:17:27 pm »
Someone mention me?

 I have it bad on my AN side but have learned to suppress it. It really doesn't bother me.
5cm x 5cm left-side A.N. partially removed via Middle Fossa 9/21/2005 @ Mass General. 
Compounded by hydrocephalus. Shunt installed 8/10/2005.
Dr. Fred Barker - Neurosurgeon and Dr. Michael McKenna - Neurotologist.

Lupy

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #25 on: March 30, 2009, 02:21:45 am »
Having only recently been diagnoised with AN, and as a PhD psychology student, I have been looking into CBT (cognitive behavioural therapy) and tinnitus. There seems to be some really effective techniques available... Even a study you can partake in at YALE among other places.

http://www.yaletrials.org/clinicalTrials/displayTrial.asp?nctID=NCT00724152&pageID=1&row=1

http://clinicaltrials.gov/ct2/show/NCT00724152?cond=%22Nervous+System+Diseases%22+AND+%22Hearing+Disorders%22

http://www.ncbi.nlm.nih.gov/pubmed/17253549

“Life is a mystery to be lived, not a problem to be solved” S. Kierkegaard

2.5cm Tumour removed 1/7/2009
Retrosigmoid @ The Royal Melbourne
Debilitating headaches/migraines from 2 weeks post surgery till current.

pauline

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #26 on: March 30, 2009, 07:10:36 am »
HA - love the topic name!  There are many days I think I am going to lose my mind because of tinnitus and hearing distortion!
Mine is so loud and many pitches.  All the above responses are great - when I attend a concert, it does help to have an earplug
or a noise cancelling earphone.  Bose has the ones that go right in your ear so it is not obvious.  Much luck to you.
You learn to live with it eventually because you have to! 

Paula
Pianist & Piano Teacher
Diagnosed 6/27/08
Watch and Wait

bambi81

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #27 on: March 30, 2009, 09:50:58 am »
Yeah, I have it pretty bad in my right ear.  It drives me nuts.  Funny story, (funny now....)  last night I was in the bedroom watching TV and on the internet, when all the sudden, I started hearing ringing in my GOOD ear!!!!  I sat up in a panic!!!  I am so terrified now, that I only have one good ear, what if something happens to it????  I ran into the living room and started crying to my boyfriend.  He calmed me down on the outside, in the inside I was still crying....  We agreed I'd call the doc in the morning (when there is NOTHING he can do about it anyways!!!).  When my boyfriend came to bed, he laid there for a minute, and then said... "I hear it too!!!!" It turns out it was my computer!!!!!  I was  so relieved!!!!

Rivergirl

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #28 on: March 30, 2009, 07:04:25 pm »
Tinnitis is my new normal, I hate it.  I have come to the realization it is not going away, wish it would.  I do love my sound machine, love the wterfall and the rain ones but then all that water dripping makes me want to pee.............just can't win sometimes.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

moe

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Re: Does anyone actually lose their mind because of tinnitus?
« Reply #29 on: March 30, 2009, 09:59:36 pm »
That's a funny one with the computer noise :D
How were your MRI results, today Whitney?
maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty