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Author Topic: NF2 takes another one  (Read 8165 times)

Mark H

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NF2 takes another one
« on: March 09, 2009, 10:53:15 pm »
He wasn't a poster here but this morning my friend michael "Ghostwriter for God" Gergley lost his battle against NF2. He never could recover from his last surgery and spent several months in the hospital and rehab. He is going to be greatly missed by those of us who knew him.
Mark
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nancyann

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Re: NF2 takes another one
« Reply #1 on: March 09, 2009, 11:08:52 pm »
so sorry to hear this Mark,  my heart goes out to all those who knew him.
keep a peaceful heart my friend,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

suboo73

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Re: NF2 takes another one
« Reply #2 on: March 10, 2009, 04:05:14 am »
Mark, 

My thoughts and prayers go out to you and Michael's extended family. 
I am so sorry for the loss of your friend.  :'(
Thank you for sharing the news...

Sincerely,
Sue

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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Jim Scott

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Re: NF2 takes another one
« Reply #3 on: March 10, 2009, 11:38:32 am »
Mark ~

I'm terribly sorry to learn of this untimely death stemming from NF2 surgery.  Please accept my condolences.  You and Michael's family are in my prayers at this time of loss.

Jim
« Last Edit: March 11, 2009, 02:04:13 pm by Jim Scott »
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jeff

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Re: NF2 takes another one
« Reply #4 on: March 13, 2009, 08:08:09 pm »
Mark,
If I had any tears, they would be falling. Michael was a wonderful person. He encouraged me greatly when I was first diagnosed 7 years ago. He will indeed be greatly missed.
Jeff
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NF2
multiple AN surgeries
last surgery June 08

Mark H

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Re: NF2 takes another one
« Reply #5 on: March 13, 2009, 10:27:50 pm »
Thank you everybody.
Jeff, Michael was a truly good guy who touched many lives in his too short time here. I wish I could be even 1/3 as good a person as he was.
Mark
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sgerrard

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Re: NF2 takes another one
« Reply #6 on: March 13, 2009, 11:18:08 pm »
I finally had a chance to Google Michael Gergley. There seem to be quite a few people who knew him and loved him. I wish I had gotten to know him, I think I would have liked him. I also came across Yvonne, someone who wrote about Michael in a book called "I'm Not Sick, Just a Bit Unwell." I think I want to read that.

My heart goes out to those who knew him, it is a sad ending to a good man's life. My best wishes to Jeff and Mark for continuing health.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Mark H

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Re: NF2 takes another one
« Reply #7 on: March 14, 2009, 08:13:08 am »
Steve,
Yvonne is a young lady with NF@ who lives in Malaysia. Actually she's here in the States right now for treatment of one of her tumors. Her book is a good one and worth reading. Funds from it, and also t-shirts and other things she has designed and sells go to helping her with medica bills. Michael also wrote a few books, poetry mixed in with his life.
Mark
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Jeff

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Re: NF2 takes another one
« Reply #8 on: March 14, 2009, 04:20:06 pm »
Quote from: Mark H on March 14, 2009, 08:13:08 am
Actually she's here in the States right now for treatment of one of her tumors.
Mark,
Is she in LA? I am going to House on Weds. for appointments.
Jeff
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NF2
multiple AN surgeries
last surgery June 08

Kaybo

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Re: NF2 takes another one
« Reply #9 on: March 14, 2009, 05:21:18 pm »
mark~
I read about this when I found Yvonne's blog (I got an alert from Google) - I am so sorry for all who knew him or came in contact with  him.  It sounds like he was a great guy who touched a lot of lives!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Mark H

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Re: NF2 takes another one
« Reply #10 on: March 14, 2009, 06:59:17 pm »
Jeff,
here's a link to her bolg. Looks like she will be at Good Sam.
Mark

http://www.yvonnefoong.com/
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Jeff

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Re: NF2 takes another one
« Reply #11 on: March 15, 2009, 08:38:10 am »
Thanks Mark,
I didn't think to look there before I asked. But I did check there right after I posted. Thanks again,
Jeff
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NF2
multiple AN surgeries
last surgery June 08

Raven

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Re: NF2 takes another one
« Reply #12 on: March 15, 2009, 04:57:52 pm »
Mark,

So sorry to hear about your friend..........NF2 stinks.

John
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7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center
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