SEVERE VERTIGO :(

[Arasha]

Hi Everyone;

I am 16 months after the surgery, 38 years old, my balance is good, it improved a lot, but lately I've been having migraines which I was controlling with excedrin. This morning when I woke up I had severe vertigos, five times +-1 min/each, this is the first time I feel this, I could not get up from the bed, the ceiling was turning around very fast. I am worried, does anyone had the same symptons after the surgery?. I had an MRI 8 months after the op and it showed no tumor.

8 years ago I had similar symptoms. When the doctor discovered my AN and I told him I experienced vertigo long time ago, he said  probably it was when the tumor was starting to grow. Just the idea to have another AN makes my world come to the floor. I have been under stress the last days, could this be a reason?. Perhaps the age?

Any advices will be highly appreciated.

Gloria

[Kaybo]

Gloria~
I could be wrong, but if it has been this long since surgery, I think I would look to other things to figure out what is wrong and not just assume that it is the tumor again.  Are you going to your Dr. about this??  Hope you get some answers soon!

K

[kathylittlejohncobb]

Gloria, I agree with Kaybo.  Going to your doctor immediately will relieve your worries.  The not knowing is worse than facing whatever the problem is.  It could very well be something totally unrelated to ANs, such as an unrelated inner ear problem.  I hope you will be telling us soon that you have gone to your doctor and you can relate to us a minor problem!  The anxiety of not knowing will only feed your worries.  Good luck and God bless!
Kathy                 

[Keeping Up]

I came to this side of the forum (I haven't had any treatment) to see if anyone is having any vertigo issues - which is unusual for me.

How are you feeling?  Any virus/stuffy nose/full head stuff going on?

I am asymptomatic with a tiny tumor (IAC) and not planning, hopefully, any treatment any time soon.  SO, I am an unusual poster over here.

On Saturday morning, I got up (I always get up quickly), and used the loo in the morning. I thought I was going to blast right off it - the spins were something I have never felt before, ever.  Thought, oh no, here we go - something is happening.  Then this morning, again leapt out of bed, lasted upright for less than a few seconds, before I hit the floor - the whole room was spinning.  I had no clue which way was up.  Again, something like that hasn't happened to me (I have low blood sugar/low blood pressure 'black out', sit down on the floor - but that is highly controlled - this wasn't at all like that, the world spun!)

However, I have been feeling a bit off.

Then, at work today - was feeling off balance on and off all day.  I was talking with one of the team who was off sick earlier this week - I assumed virus, while somewhat virus related, it was mainly balance - he couldn't stand up without serious episodes over vertigo.  He just started heart medicine - and thought he was having a heart attack.  He called the doctor - who said not related to the heart medicine, more than likely virus.  Both of us were very relieve to hear that a virus is going about causing bouts of vertigo.

So ... I would get it checked out ASAP given the history, but hopefully you just have a bit of a virus that is throwing off your balance.

Ann

[Arasha]

Thanks Kaybo, Kathy and Ann for your comments.  I am getting better but still dizzy, when I make fast movements I have episodes of vertigo, so, I am moving like robot. 

I tried to schedule and appointment with the ENT but the soonest available date to assist me is on March 19, so I went to the doctor (general physician), after checking me he said that I have the symptoms of virus located in the labyrinth (Ann you were right). I am taking medicine and probably it will go away in a few days.

It is assumed that the defenses of my body are low.

Anyways I still keep the appointment with my ENT.

Thanks again for all your support.
Gloria

[kathylittlejohncobb]

Gloria, so glad you have gone to your doctor, and so glad that you will keep your ENT appointment, as well!  Your peace of mind will undoubtedly increase even more after that visit, and hopefully your vertigo will be totally gone very soon!
Kathy

[Arasha]

Kathy,

Thanks for your quote, unfortunatelly I don't get better and went to the Doctor again, he said that it is not the virus as he supposed; he transfered me to the ENT and I have the appointment this next Friday.  I will let you know what it is wrong with me. My vertigos don't leave me alone.

Take care,
Gloria

[Tumbleweed]

FWIW, my AN was initially misdiagnosed as labyrinthitis (a viral infection of the labyrinth, or inner ear, which causes inflammation and attendant nerve irritation). If the vertigo resolves itself within a few days, that would tend to confirm labyrinthitis or vestibular neuronitis (a similar condition), or possibly BPV (benign positional vertigo). But if it lingers for weeks or months, it's more likely something else is causing the vertigo. In any case, Gloria, given your past medical history, I would not wait weeks or months. I would have a specialist rule out another AN (or regrowth) just to be on the safe side.

Please don't trust your diagnosis to an ENT. You need to see someone more highly specialized in ANs, given your history. At least see an otoneurologist. Your neurosurgeon would be the best person to see; alternatively, email or call them to apprise them of your symptoms and get their advice. FWIW again, the guy who initially misdiagnosed my AN almost 9 years ago was my ENT!

Best wishes,
TW

[jazzfunkanne]

Hi Gloria, how is your vertigo now?

[Seal]

Hola Gloria,

I am very sorry to hear of a return of the vertigo.    Since it came on you so quickly, there must be something that the doctor determine.   Ask him if an immediate MRI should be done to get to the bottom quickly of what the is causing the vertigo.    Keep us updated after your appointment.

Best regards,
Steve

[kathylittlejohncobb]

Hi Gloria,
Please do keep us posted on what your doctors say.  My ENT is the one who first suspected my AN & ordered an MRI, so that is why I said I am glad you are keeping your ENT appointment.  If your ENT is like Tumbleweed's, though, I definitely agree that seeing your neurosurgeon would be the way to go.  Let us know what you find out.
Kathy

[sgerrard]

Best wishes, Gloria. Hope something works out soon.

Steve

[ernie h]

hope you get relief soon gloria.i know how it feels hang in there.  ernie.

[Arasha]

THANKS EVERYBODY FOR YOUR SUPPORT!!!

I do not improve but get worse, vertigos make me awake at night.  As Tumbleweed suggested me, I called to the ENT to apprise the appointment as urgently as possible instead of waiting until the date was scheduled (literally I was begging), her assistance asked me to fax all my history and also a request from the general physician asking for an emergency attention.  I did all of that yesterday including a letter with an explanation of my situation, I just called right now in order to know if they need further information. It seems they have all the paperwork and I keep waiting until the ENT calls me hopefully today.

Thanks again to all of you: Ernie h, Sgerrard, kathylittlejohncobb,Seal,jazzfunkanne, Tumbleweed, keeping up... It is good to know that you are there to support me.

Have a good day,
Gloria

[Seal]

Hola Gloria,

Unfortunately, I cannot do much from this computer screen, but please know that I am thinking of you and hoping for the best.    Don't tell my wife, but I'm sending you big hugs from the East Coast!!!!     We are all thinking of you and hoping that this is  temporary and easily correctable set back you your AN journey.      Keep us updated as you find out more.

Warm regards,
Steve