« previous next »
Pages: [1] 2

Author Topic: Annual MRI Date set!  (Read 3969 times)

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Annual MRI Date set!
« on: February 27, 2009, 02:48:43 pm »
Well, I've finally scheduled my first annual MRI follow-up to surgery.  May 8th is my actual surgery anniversary, and the date I set this year is May 6th (at 3:00).  I'll put on the calendar!

Luckily, scheduling it this far in advance I didn't have trouble scheduling it as I had pick of times.

Let's hope they find nothing except fat and air.. oh, and a brain would be nice.  :)

Regards,
Brian
Logged
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

macintosh

  • Full Member
  • ***
  • Posts: 117
Re: Annual MRI Date set!
« Reply #1 on: February 27, 2009, 03:45:56 pm »
There's an old story that after Yogi Berra suffered a concussion, the official hospital report read that "X-rays of Berra's head showed nothing."

Good luck with the MRI,

mac
Logged

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: Annual MRI Date set!
« Reply #2 on: February 27, 2009, 03:47:15 pm »
Brian:

Good luck and best wishes on your First Annual MRI scan. 

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

texsooner

  • Sr. Member
  • ****
  • Posts: 329
Re: Annual MRI Date set!
« Reply #3 on: February 27, 2009, 04:09:07 pm »
Brian, good luck to you on the MRI. I'll be about 3 months behind you for my 1st annual MRI. Probably sounds weird, but I'm actually looking forward to mine....guess I want proof that the nasty booger hasn't returned.

Patrick
Logged
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Re: Annual MRI Date set!
« Reply #4 on: February 27, 2009, 04:20:22 pm »
Thanks all! 

Texsooner, I'm with you.. I want proof that they got it all.  There's always the fear that a) they didn't get it all or b) they find another one on the other side..  I don't want to have to relive the last 10 months again..  Once was enough.

Regards,
Brian
Logged
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Jwh

  • Full Member
  • ***
  • Posts: 224
Re: Annual MRI Date set!
« Reply #5 on: February 27, 2009, 06:57:58 pm »
Did you have a 3 month MRI post surgery?  I will have one in April some time - still need to schedule it.  My stomach starts to bubble just thinking about it.  Been down this road to many times.  The "third" will NOT be a charm for me!!

Hope all goes well for you.

Jen
Logged
5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

Kathy M

  • Sr. Member
  • ****
  • Posts: 317
  • Kathy
Re: Annual MRI Date set!
« Reply #6 on: February 27, 2009, 07:17:57 pm »
Best of luck to you Brian!  I can only imagine how you must be feeling knowing that you are so close to having your one year milestone.   Can't wait to hear the good news that all is clear!!!!!

Kathy
Logged
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Re: Annual MRI Date set!
« Reply #7 on: February 27, 2009, 08:56:58 pm »
Jen, no..I did not have a 3 month MRI.  My doctor only does annuals.  Good luck in April!  I hope they find nothing but a brain! ;)

Kathy, admittedly I get more nervous as it gets closer.  I try to put it out of my head (no pun intended), but often come back to it.. I've even had a few dreams of having my 1 year MRI and being told that another was found.  I'm sure it's fine and I'm getting all worked up over nothing, but I guess we all fear it to some degree.  It's definitely the news we all don't want to get..  At least I'm not alone in that regard.  :)

Regards,
Brian
Logged
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Keeping Up

  • Sr. Member
  • ****
  • Posts: 253
Re: Annual MRI Date set!
« Reply #8 on: February 27, 2009, 09:40:52 pm »
Quote from: Pooter on February 27, 2009, 02:48:43 pm

Luckily, scheduling it this far in advance I didn't have trouble scheduling it as I had pick of times.


My 6 month was schedule in December - May 21rst at 6:00AM - times even suck in Canada 5 months in advance - still better than 4am!

I counted the days today - about 82 days (challenging me if you want).

I hate the waiting!

Ann
Logged
dx Dec/08 - 5mm x 8mm AN
'watch and wait'

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Annual MRI Date set!
« Reply #9 on: February 28, 2009, 01:44:16 am »
Brian:  After my 1st year post op MRI, the radiologist said there was a 1.3cm x 1.7 regrowth (I had requested the results  be mailed to my home).
Well, I freaked out ! !   But thanks to the folks on this site,  I was told not to worry too soon, it could be fat packing, etc. 
My neurosurgeon confirmed what those here told me.   The radiologist misdiagnosed !   My 2nd year MRI was fine.
So, just a warning, don't worry if you hear that report from the radiologist,  wait until your surgeons let you know.
& yes,  I'm very nervous when each year rolls around (in fact,  the 1st year,  I put it off for 2 months).

Always good thoughts,   Nancy
« Last Edit: February 28, 2009, 05:24:51 am by nancyann »
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: Annual MRI Date set!
« Reply #10 on: February 28, 2009, 10:03:19 am »
Hi Brian,

I'm happy to hear that you got to choose a date to close to your surgical anniversary.  It seems fitting and I'm sure will give you a sense of closure, even though you'll be following this for a few years at least.  I know it's probably even more than that to you because I feel the same way.   It's like you'll have come full circle.  I wish you the very best and hope it's a nice clean MRI with no surprises.

Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

moe

  • Hero Member
  • *****
  • Posts: 1697
Re: Annual MRI Date set!
« Reply #11 on: February 28, 2009, 02:27:33 pm »
Happy thoughts to you. I do get a little paranoid with my symptoms. "OH no I have another acoustic neuroma." :o
 They got the whole tumor (with some sacrificial cranial nerves). One year out there was no tumor. He said come back in 5 years.5 years?! Are you sure you don't want to see me next year????
This is at Madigan Army Med Ctr. in Tacoma, WA.
MOE
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Annual MRI Date set!
« Reply #12 on: February 28, 2009, 04:50:38 pm »
Ya know Moe, I've been thinking of waiting on my next MRI at 5 years - it'll be June, 2011.  Haven't decided yet - do the 3rd year or wait...
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Annual MRI Date set!
« Reply #13 on: February 28, 2009, 06:14:17 pm »
Just my 2 cents...even though I did mine every year for 5 years like they told me to, every few (4-5), I kind of need to have another for my peace of mind!  If you can go without or stop cold turkey after 5 years, I guess that is good, but for me, I would stick to it - it decreases that "what if" thing that creeps up when you least expect it!!
 ;D
K
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Annual MRI Date set!
« Reply #14 on: March 01, 2009, 05:57:08 am »
K:  Do you remember if right from the start you had MRI's every 5 years ?   Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis
Pages: [1] 2
« previous next »