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Author Topic: Cross your fingers  (Read 2598 times)

Kim Zingale

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Cross your fingers
« on: February 15, 2009, 06:50:47 pm »
I think I will be able to go home tomorrow. Thanks for your thoughts and prayers over the past week but help me with vibes to get to leave the hospital! Thanks, and I hope everyone is doing well :) I'll probably be posting some questions again soon (namely related to this weird taste thing I have going on).

Kim
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Retrosigmoid surgery Feb. 9, 2009 at Johns Hopkins with Drs. Tamargo and Carey.
http://adventureswithmanny.blogspot.com

Jwh

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Re: Cross your fingers
« Reply #1 on: February 15, 2009, 07:29:39 pm »
Hope you get out soon!  Keep us updated  :)  Had my surgery 3 weeks ago have some strange taste going on as well - humm.
Jen
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

MAlegant

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Re: Cross your fingers
« Reply #2 on: February 15, 2009, 07:48:41 pm »
Taste thing is normal--it will pass. I hope you get sprung tomorrow.
Best,
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Dog Lover

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Re: Cross your fingers
« Reply #3 on: February 15, 2009, 11:03:33 pm »
Yep - taste thing is normal. It lasted for almost 2 months for me. Sugar was the first thing to taste normal. Salt was the last.

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

lacey7

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Re: Cross your fingers
« Reply #4 on: February 15, 2009, 11:16:39 pm »
It's been almost 8 months for me, and last week was my first pizza in that whole time!!!  My tastes have really changed.  Can't eat the kind of cereal I used to love.
Food just tastes different.  My doctor said it could take as long as a year for them to "wake up"!  Wish my pizza one would have woken up sooner!!  ha.
Love,
Lacey
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Diagnosed 4/15/08.
AN - 1.4 cm.  Translab surgery 6-26-08.  SPF leak 7-5-08, and went back into surgery 7 -6-08.
SSD left side, after surgery
Dr. LaRoure - Providence Hospital, Southfield, MI.

sgerrard

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Re: Cross your fingers
« Reply #5 on: February 15, 2009, 11:31:33 pm »
Welcome back, Kim. I have no idea on the taste thing, but everyone seems to be saying it is normal, so normal it is. Hope you make it home tomorrow.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Cross your fingers
« Reply #6 on: February 15, 2009, 11:35:25 pm »
Metallic mouth - ah, I remember it well  :D  This too shall pass.

Hope they spring you tomorrow, Kim.

Let us know,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

suboo73

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Re: Cross your fingers
« Reply #7 on: February 16, 2009, 04:27:09 am »
Hi Kim!  Welcome back to the forum!
Thinking good thoughts so you can go home today!

All my thoughts and prayers.

Sue

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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

texsooner

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Re: Cross your fingers
« Reply #8 on: February 16, 2009, 06:24:42 am »
good vibes, good vibes, good vibes......hope you get sprung in good shape today Kim. Good luck and keep in touch.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

GRACE1

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Re: Cross your fingers
« Reply #9 on: February 16, 2009, 08:22:29 am »
My thoughts and prayers are with you today that you can get out.  I know you are ready.  Take care!!!

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

NancyMc

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Re: Cross your fingers
« Reply #10 on: February 16, 2009, 08:28:15 am »
Kim,
I've been following Manny's blog and your frustrations with the lack of specialized care. 
Hoping for the best for you, and thanks for sharing your experiences.  It means a lot when there are just ten days left of normal life.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Jim Scott

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Re: Cross your fingers
« Reply #11 on: February 16, 2009, 03:31:57 pm »
Hi, Kim:

I vividly recall my strong desire to be released from the hospital following my AN surgery (in 2006) so I can empathize with your pleas for vibes.  You know you have them - from all of us.  :)

The taste issue is not really all that unusual and will probably pass, in time.  Let's hope so.

Take care, rest as you need to and feel free to post any question, any time, for no charge ;)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

wendysig

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Re: Cross your fingers
« Reply #12 on: February 16, 2009, 04:31:52 pm »
Hi Kim,
I'm glad to hear you'll probably be going home tomorrow -- being in the hospital is not an experience I've ever wanted to prolong.  I had a was there 6 days including the day of my surgery and was very happy to leave.  I have to say the standard of care I received was excellent, but as the saying goes, there's no place like home.  As everyone else has said the taste thing is must part of the AN package -- this too shall pass.

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Keri

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Re: Cross your fingers
« Reply #13 on: February 18, 2009, 11:05:06 am »
Hi Kim

I hope you're home now and feeling comfortable.
I never know where to write people, but i posted a long, rambling reply to you - i think it's under 'an community' where your friend first posted your surgery report.
I started having questions post surgery too. ... received help here, and will probably post more soon.
We all hope you're doing well. Look forward to hearing from you when you feeling like typing!

Keri - my 3 wk translab anniv tomorrow
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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