Author Topic: Tinnitis...does it go away??  (Read 12367 times)

CNY

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Re: Tinnitis...does it go away??
« Reply #15 on: February 05, 2009, 12:06:51 pm »
I recommend an article from the current issue of the New Yorker magazine regarding Tinnitus.

 Jerome Groopman, Medical Dispatch: That Buzzing Sound, 'What causes tinnitus?' -- (February 9 & 16, 2009) starting on page 42.  AN is discussed but not named in a paragraph on page 44.  The article includes a description of some new research & possible tinnitus treatments.  There is also in interesting discussion of the frequency of the problem with returning vets.

FWIW, I have some tinnitus but it doesn't seem to interfere with my life.

I'm pre-op & an occasional lurker on this site-- it has been really helpful to see a range of issues discussed.

I was Diagnosed last summer (2 cm) - dealing with other medical issues prior to translab surgery.



Translab @House 5/14/09 (2 cm)

Jan D

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Re: Tinnitis...does it go away??
« Reply #16 on: February 05, 2009, 09:33:13 pm »
Not sure if this is the correct thread to add this, but I found an organization online called the American Tinnitus Association (they have an association for everything!).

Their website is:  www.ata.org and they have some good tips for coping with tinnitus.

Jan D
AN removed July, 1966, size of golf ball, seventh nerve severed, shoulder nerve graft in 1967, corner of eyelid stiched twice, deafness in right ear, right eye does not close nor tear and right side of face has virtually no movement.

Rivergirl

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Re: Tinnitis...does it go away??
« Reply #17 on: February 11, 2009, 07:46:27 pm »
Thanks everyone.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

golden

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Re: Tinnitis...does it go away??
« Reply #18 on: February 11, 2009, 09:47:19 pm »
 The ringing, woooshing,  ect. that I endure everyday is driving me crazy. Does anyone have a problem with the volume increasing and decreasing when you turn your head or move your eyes from right to left. My tinnitis is far worse than before surgery. I wake up alot during the night and it almost sounds like people talking on the T.V. but, you make out what they are saying. I always think one of the kids left the t.v. on and I have to get up and check. Some thimes I think I am going out of my mind :P  I try to ingnore it but somedtimes I can't exspecially when it is in high pitch mood. I do try to distract myself from the noise but, it is hard for me to ignore. I would think being SSD on the left side I surely wouldn't be able to hear anything I am deaf lol ;D
If anyone comes up with something that really works to distract yourself, then let me know.

Golden

sgerrard

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Re: Tinnitis...does it go away??
« Reply #19 on: February 11, 2009, 10:57:37 pm »
Does anyone have a problem with the volume increasing and decreasing when you turn your head or move your eyes from right to left.

Does it help to know it has a name?  ???

That would be something called "gaze-evoked tinnitus." There is brief discussion here, with links to more:

http://anausa.org/forum/index.php?topic=8111.0

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Rivergirl

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Re: Tinnitis...does it go away??
« Reply #20 on: February 12, 2009, 06:58:18 pm »
My Dr. in Boston (McKenna) suggested I try Celexa (antidepressant) because some people with tinnitis have had some success while on this med, they don't know why it helps some but I figured it was worth a try.  He said wait a couple of weeks to give it a chance, its been 2 weeks nothing yet but I think I am a bit happier.  On a more serious note, it does stink to have this, I try to keep noise around me all the time, I listen to my noise machine at night.....waterfall or rain and that is a blessing.  I don't like the silence.  They say we get used to it, some moments I do.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Mickey

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Re: Tinnitis...does it go away??
« Reply #21 on: February 12, 2009, 09:53:15 pm »
Hi Rivergal! Yes, I`m W+W with about the same size AN as you and just turned 60. I did do neuromonics which although expensive without coverage has helped a bit. It has made my tinitus much more bearable. Hasn't gone away but not near as annoying. Just a heads up, Mickey

moe

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Re: Tinnitis...does it go away??
« Reply #22 on: February 27, 2009, 10:02:23 am »
I'm new to the forum, one of the lucky ones with screechy tinnitus in the deaf left ear (worse after surgery). Having that hearing nerve intact is a MUST, otherwise like in my case, there is NOTHING you can do. Yep just gotta live with it. Sometimes I just wanna cry-OK I do. It's almost like so loud it hurts.
I've been to a shrink to try different meds to see if they will calm the neurons. Antiseizure meds didn't work. The only one that  has helped is XANAX, and that is a highly addictive benzodiazepam. Docs don't like to prescribe it. I'm in the military system BTW. Low dose of .5 mg two times a day, which brings it down a bit, but not enough. I would love more of it!
So with your hearing nerve intact, it is so much easier to muffle the sound. You do have some control at least.
Wish I had my hearing nerve,
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Rivergirl

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Re: Tinnitis...does it go away??
« Reply #23 on: March 01, 2009, 12:21:18 pm »
Sorry for all that responded with tinnitis.  The celexa did not work for me so I am weaning off it, you can't stop it abruptly.  I just keep busy and avoid silence, not much more I can do.  Thanks all for the advice.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

john j

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Re: Tinnitis...does it go away??
« Reply #24 on: March 01, 2009, 07:48:44 pm »
40 years of very unscientific observation tell me that my AN tinnitus is aggravated by: fatigue, stress, caffeine, aspirin, and - darn it - beer (the next morning, anyway).  During a busy working day, the brain will pretty much ignore the noise, but in the still of the night I'm treated to a high pitched whistling or, conversely and for no understandable reason, a deep machine-like purr, like someone three doors down running a snow blower.  You will learn to deal with it...trust me.
AN surgery Jan 1969, Wilford Hall Air Force Hosp, Lackland AFB, TX

Keeping Up

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Re: Tinnitis...does it go away??
« Reply #25 on: March 01, 2009, 09:44:41 pm »
So ... is it the beer that makes your ears ring or the really loud bar where you drank that beer.

The question has baffled me - I don't think I ever notice tinnitus until after I was told I had mild hearing loss (and the web told me I likely had tinnitus) other than after a big night of loud music and beer (and that was at university 15 odd years ago.)  Between the spins and the tinnitus, I don't drink anymore beer!

Ann
dx Dec/08 - 5mm x 8mm AN
'watch and wait'

kathylittlejohncobb

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Re: Tinnitis...does it go away??
« Reply #26 on: March 04, 2009, 04:46:03 pm »
Hi, I am just shy of 3 years post-surgery.  My tinnitis has not gone away, but at times I am unaware of it, and at other times it seems loud.  I've noticed that when I am busy with something I like or am engrossed in, the sound appears to recede.  If I have a headache or am tired, it is more noticeable.     
Retrosigmoid at House/St. Vincent's in Los Angeles 4-4-06; partial hearing saved on AN side;
Dr. Marc Schwartz & Dr. Rick Friedman, my heroes!

Sue

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Re: Tinnitis...does it go away??
« Reply #27 on: March 05, 2009, 02:42:25 pm »
Hi,

I'm revisiting this thread.  I went to the ATA site and found it interesting.  I also saw the pages that have the CD's that you can listen to at night.  I think I might invest in a CD player for my bedroom and play those CD's instead of the big box fan that looks terrible.  Also, I think I've seen this before, but if you go here you can see the different sounds people get in their ear/head.  Mine is kind of a combination of the roar and the static.  It is not a steady sound, if you really listen to it.  It has tiny swirls and pulses and louder and quieter areas.  It's quite a symphony of texture to the whole mess. 

Sue
http://www.ata.org/store/downloads-0
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
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http://suecollins-blog.blogspot.com/2010/02/hello.html


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Esperanza

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Re: Tinnitis...does it go away??
« Reply #28 on: March 05, 2009, 03:06:13 pm »
I started to get a pulsative type of tinnitus in my good ear a few weeks ago although I did mention it to the Specialist he did not take it further.
Has anyone else suffered this in their good ear and did they have it treated?
Along with the increase i've had in the deaf one which hasn't got better it is all a bit unkind really  :'(

Profoundly deaf suddenly on AN side with vertigo January 3rd 2008.
12mm left side AN diagnosed 20th Jan. 2008.  MRI  in July shows no growth. What do I do now?????

moe

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Re: Tinnitis...does it go away??
« Reply #29 on: March 05, 2009, 10:21:37 pm »
Unkind is  too nice of a word. Anyone tried acupuncture?
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty