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Author Topic: necrosis of the skin with GK,CK??  (Read 1893 times)

Greg M

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necrosis of the skin with GK,CK??
« on: January 18, 2009, 04:48:39 pm »
Is there a link between the GK,CK treatment with getting necrosis of the skin afterwards?? Has anyone had this happen?? Greg
« Last Edit: January 18, 2009, 05:00:47 pm by Greg M »
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diagnosed 1-9-09 1.3cm LF side AN
some tinnitus, high frequency hearing loss
GK 6-17-09 @ GK center of Portland
Dr.Bader & Dr.Wayson
Time will tell......

sgerrard

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Re: necrosis of the skin with GK,CK??
« Reply #1 on: January 18, 2009, 05:16:15 pm »
Not that I know of. Some have said they got a little bald spot for a while, and someone reported a red spot once, but that is all I've ever heard about.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

windy

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Re: necrosis of the skin with GK,CK??
« Reply #2 on: January 18, 2009, 10:05:55 pm »
Greg,  I have had scarring and pitting of my facial skin since GK.  I am told it is extremely rare.  I am just curious why you asked.  Has someone mentioned this to you as a possible post radiation problem?
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

Greg M

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Re: necrosis of the skin with GK,CK??
« Reply #3 on: January 18, 2009, 10:55:53 pm »
Windy, I read a post by someone in the achives who has had severe necrosis of the skin after there gk but they had other tumor related things going on. It was all over there body. I was praying that this is an abnormal condition. And I hope that person is doing o.k. Greg
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diagnosed 1-9-09 1.3cm LF side AN
some tinnitus, high frequency hearing loss
GK 6-17-09 @ GK center of Portland
Dr.Bader & Dr.Wayson
Time will tell......

windy

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Re: necrosis of the skin with GK,CK??
« Reply #4 on: January 18, 2009, 11:15:35 pm »
Thank you for your response Greg.  I hate to hear of such as sad medical case as that person experienced.  I would think they had more complications going on than just a GK issue.  I would definitely think it was not the norm!
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* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014
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