Author Topic: How much excess Dura fluid do we make after AN treatment?  (Read 3530 times)

4cm in Pacific Northwest

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How much excess Dura fluid do we make after AN treatment?
« on: December 13, 2008, 02:43:48 pm »


Immediately after surgery, 16 moths ago,  I had brain swelling and CSF leaks. It was very hard for me as I was having challenges at focusing in thought, speech etc. Motor coordination was also poor.

With Diamox and time- the CSK leaks cleared up …

During the day I am now fine and do not have any cognitive issues. However at the end of the day I am very tired and I just go to bed when I know I am exhibiting symptoms. I do always question,

"AM I simply exhausted from balancing all day with only one remain vestibular nerve or am I getting a build up of Dura fluid at the end of the day?"

For those of you having cognitive issues I highly recommend that you get a neurologist to look at you post-op MRI and to look at the Dura fluid- particularly if there is a sign of excess fluid.

Here is a video that was shared with me by a family member.


NPH- The untold story

http://uk.youtube.com/watch?v=fm0CZh_X-vM

In past medial documentation cognitive issues are not suppose to happen with AN tumors.  ???

When I see this video about hydrocephalus- it has me asking many questions.   :-\

I wanted to share this video with you-all…

DHM




« Last Edit: December 13, 2008, 03:08:34 pm by 4cm in Pacific Northwest »
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

wendysig

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Re: How much excess Dura fluid do we make after AN treatment?
« Reply #1 on: December 29, 2008, 10:20:41 am »
Wow, a great video!  I am fortunate not to have any major problems, but this might help someone else.  Thanks for sharing.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

 


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