Just back from Opthamologist and she said my eye is looking great.
It STILL will not close (not sure i have had any progress in this department, although when i smile, the lower lid does move up slightly now... I am hoping the top lid catches up).
Oh Michelle... your words "when i am done with this ordeal" hit me. Will we ever be?? The reality is that for some their eye never closes; I am not convinced I will not be one of these people. My smile too is coming along well, esp in the last 2 months or so. The facial therapist (who i also saw this week) gave me a 50% on my open mouth smile. Still can't whistle to save my life though! With an improving smile, i am now quite anxious for the eye to close, blink. I am 9 months out now i think.
I asked the opthamologist again about the eye weight...IF my eye is one of those that never recovers (closes). She said what she has for the past 6 months... the weight is not necessary if I am taking good care of my eye (which i clearly am) and there is no ongoing damage. The threat of having it sewn shut is a powerful motivator! She also said that a weight would make my eye droop a bit and look worse than now (which is not bad, although mascara and lashes that curled up would help a lot!). I wear eyeglasses during the day (i have a mild presrciption for distance, but didn't wear eye glasses prior to having these eye issues). Outside, i wear safety glassses that i bought for $10 from home depot. They do not offer the same kind of protection that moisture chambers would, but are cheap, seem to be doing the trick (even through our very cold and windy winter) and look almost fashionable (!!??!?!? from the depot). They wrap around enough to keep out debris and wind well. I am still using the drops (just the preservative free ones, the Refresh Celluvisc as they feel the best) but can go a few hours between drops. Ointment before bed (still taping eye at night, prirate patch for naps), and before leaving the house in the morning, and whenever the drops don't seem to be cutting it.
Like many others out there who have been at this protocol for many months, I have gotten used to the routine and am managing pretty well considering. I do hope that this too shall pass, but must continue to wait and hope.
Good luck to all of you going through this, and especially those just starting out. It, like many things, does get easier over time.