I had CK done,I was told nothing to it,although that was true,the headaches and hemifacial spasms which occured 3mos.later ,was unexpected,and being on decadron,and extremely sick all summer,ana unable to work for a couple months,made me wish I had watched and waited.I finally got weaned off the decadron,which was hell in itself,but now feel much better.I still have facial spasms,but no headaches,and am active once again.Honestly,I would do CK again,but probably at different facility,with different doctors.When I was having a horrible time on steroids,I called the CK center and explained to nurse what was going on,she told me that couldn,t be from the CK,or steroids,and said to check with my GP.He wasn,t familiar with CK side effects,and had me contact neurosurgeon,who although prescribed some different drugs,this only made things worse.I finally got off drugs and doing 100% better.
I also went to CK forum,and must thank Dr.Medbury,who was familiar with what I was expierencing,which in itself was a relief,as my doctors more or less blew it off.
You must be your own advocate,and if your not getting the clear answers to your questions either have doctors explain until you do,or get another opinion.A little off track I know,but felt it shoild be said. Bruce
