Author Topic: on the road to recovery  (Read 23351 times)

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: on the road to recovery
« Reply #90 on: August 15, 2008, 09:28:15 am »
Hi Marci-

I can totally relate to the anxiety!

Dont' be surprised if you end up being everyone's hero, btw ...  You're our hero~!

Deb
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #91 on: August 15, 2008, 09:32:18 am »
Awww, thanks Debbi.    :-*
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: on the road to recovery
« Reply #92 on: August 15, 2008, 09:37:09 am »
Super-Duper Marci!!
Way to Go!  Good Luck at the meeting today - I know you'll be the belle of the ball!!  Just know you will probably be exhausted tomorrow &/or the next day since you ran AND did a meeting today!!
  ;D
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #93 on: August 15, 2008, 04:28:56 pm »
Uh, Kay, do I have to wait until tomorrow to be exhausted?  Because after a 3 hour meeting (totally normal for this job) I am really tired.  All I did was sit in a chair. I didn't run the meeting, I just participated.  Ok, well, I talked a lot.  Which is NORMAL!!!

Off to happy nap land, and getting sort of kind of back to work!
Marci
« Last Edit: August 15, 2008, 05:28:00 pm by MAlegant »
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #94 on: August 17, 2008, 07:20:47 am »
Last night, big party at my house.  Brian and friends did all the work and I was able to just hang out (actually had a drink!) with the people I love.  Today I feel beaten up but it's worth it. 

Wish you all could have been there; it would have been perfect!

Marci
« Last Edit: August 18, 2008, 08:14:58 am by MAlegant »
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #95 on: August 24, 2008, 02:24:51 pm »
Ok, just returned from a visit to my mom in Florida. She hadn't seen me and just wanted to be sure I was alive. I did well on the way out, my head did not explode on the plane, and I didn't even feel tired. On Saturday I ran/walked a little more than usual (in the air conditioned gym) and then went with my mom to get a haircut.   By dinnertime I was sick, sick, sick.  Headache (shooting pains on the AN side) nausea, upset stomach. Felt awful coming home today (you should have seen me try to negotiate the moving walkway at the airport  :P) but now that I'm home on my sofa I'm much better.  So, once more I have found my limit and though it is better, I still need to remind myself not to overdo.

Marci (the intrepid traveler)
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

cindyj

  • Hero Member
  • *****
  • Posts: 1434
Re: on the road to recovery
« Reply #96 on: August 24, 2008, 07:56:35 pm »
Hey Marci,

Sounds like your trip was both good and bad.  Sure it was comforting for your mom to see you and you her, but sorry you got so sick.  Guess your body was giving you the reminder that you did just have major surgery!  Glad you felt better upon getting back on your own turf/couch.

Did you see any flooding while in Florida? 

Take it easy...

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #97 on: August 25, 2008, 05:26:24 am »
Hi Cindy,
No flooding where I was--in Boynton Beach--but I know it's been a problem there.  Yes, happy to be home and near a sofa I know well so when I need to pass out I don't have far to go.
Best,
M
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: on the road to recovery
« Reply #98 on: August 25, 2008, 11:01:02 am »
Hi Marci-

Wow - I'm impressed!  You are a warrior, girl!  Sorry that your body had to remind you so forcibly where the current boundaries are, but glad you got to see your mom.  And, yes, it is so nice to be back in your own surroundings, isn't it?

Deb
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wendysig

  • Hero Member
  • *****
  • Posts: 1937
Re: on the road to recovery
« Reply #99 on: August 25, 2008, 12:03:25 pm »
Hi Marci -
It sounds like your trip was mostly good and I'm sure it was great to see your mom.  Our bodies do have a way of striking back when we overdo it  I went to the beach the other day and fell asleep almost as soon as I sat in the car slept all the way home (abotu another 1 1/2 hours)and then slept another  10 hours Saturday night.  Luckily for me that seemed to do the trick, but I did take it easier on Sunday.   Hope your feeling back to normal (whatever that is for now).

Bet wishes,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #100 on: August 25, 2008, 01:20:57 pm »
Yes, the new normal.  This now includes spilling drinks on myself because I can't feel my lips.  This was a slight problem at a meeting but i don't think too many people noticed. Yes, I went to another meeting at work today but just for part of it. They are letting me lurk until September 15.

Marci (back on the sofa)
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: on the road to recovery
« Reply #101 on: August 25, 2008, 02:39:37 pm »
Now that's my kinda meeting if they let you drink!   ;)

Oh, wait... you meant coffee or something, didn't you?  Darn. I was all set to apply for a job.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

MAlegant

  • Hero Member
  • *****
  • Posts: 1295
  • 50th birthday party pic
Re: on the road to recovery
« Reply #102 on: August 25, 2008, 04:55:26 pm »
Lori and everyone,
Yes, it was only water, I wasn't brave enough to try coffee in public.  It was pretty funny though. 

On Wednesday I have to speak to about 700 people.  I do this every year during new student/parent orientation and normally I love it but this year I'm panicked.  What if I slur my speech?  Spit on the microphone?  Trip on my way to/from the podium? Will they all think I'm drunk?  And is that such a bad thing?  Stay tuned...
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: on the road to recovery
« Reply #103 on: August 25, 2008, 07:00:57 pm »
Well, if you do any of those things, I'm sure they'll never forget you!   ;D


Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: on the road to recovery
« Reply #104 on: August 26, 2008, 07:29:45 am »
Marci~
You could always start by saying, "You might have to bear with me as I just had BRAIN SURGERY..."  that would get their attention, but then again they might not really hear whatever else you have to say and I am sure it is important!!   ;D

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!