Hi Phyl and Jan,
I was looking back at some of my old posts, and I found this one (216) below. I haven't figured out how to do that blue highlight stuff yet so bear with my cut and paste method! As you can see I wrote the post on June 13, 2007. I guess I got the size of the woman's AN wrong--actually 3cm not 5cm like I said above in the other post. So, if ANA has changed the list by giving more specifics, then I might give it another try. Luckily the three folks I have met on this board from CO have been very helpful. Cary gave me the name of his doc who did his GK back in April, and I have an appt. with him on Aug. 6th. The other two women I met here are having surgery soon--Kathleen and Maureen. We are going to try to get together in Sept. Actually found out that Kathleen lives about 3 miles from my house so that is cool. I think she is leaving next week for her surgery. So, it isn't as if I am here alone. Just curious to see if there are other folks willing to share their doc info, etc.
216 General Category / AN Issues / Re: ANA WTT (Willing-to-Talk) List available to newbies on: June 13, 2007, 04:32:17 PM
Phyl, Just wanted to give some feedback on the WTT list and by all means I do not wish to discourage anyone from finding someone who is WTT. I was diagnosed with 4mm x 5mm Dec. 2005. Needless to say it freaked me out when I found out about the AN especially since it was found by accident. My doctor gave me info about ANA, and I got the packet from them along with the WTT list of people here in Denver. I called the first person on the top of the list, and to be honest, my conversation didn't go so well. The woman had a totally different situation than I did, and I couldn't relate at all. Her AN was like 3 cm when it was discovered, and she had surgery and suffered a whole lot of problems before and after her treatment. I do admire her very much for what she has been through, but at the same time she pretty much scared me to death. I hadn't done much research on ANs when I called her so I didn't realize that everyone's AN is different. I don't know if these people have training as far as the WTT thing goes. I think it would be helpful if they did. This woman talked about her situation throughout the 30 min. phone call. I wasn't able to get a word in. When I finally hung up the phone (went and rang the doorbell to end the conversation), I was exhausted and very frustrated. I immediately tore up the list and said to heck with talking to anyone about the AN. In retrospect I guess I should have tried someone else on the list to be fair. So, I just wanted to relate my story just in case someone else encounters the same situation. Maybe this forum is the best for me anyway. Perhaps a call to ANA would help so they can give better instructions to the WTT person. Best wishes to all of you especially to those newbies out there. I think it is normal to freak out initially and over time I think it starts to sink in and you realize that there are a lot of helpful people out there to relate to. This forum has really been a helpful outlet for me. Nancy