Author Topic: 6 weeks  (Read 3549 times)

Cheryl R

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6 weeks
« on: May 29, 2008, 01:02:40 pm »
Today is 6 weeks since my surgery.          I saw my surgeons yesterday.      The neurotologist does the tumor removal and the "fellow" neurotologist does the open and shut part of surgery.      They were very happy over my return of much of my hearing.        Gantz,the main neurotologist even hugged me.          I am very lucky for a NF2 pt.                My audiogram was the same as what it was last Aug.     I never expected to end up this good since I was near deaf pre op.    It has meant so much to me and I feel very fortunate.              I am now 70% word recognition and was 4% in Feb.     I can't remember now what the audiologist said the frequencies were exactly but they were improved.   I think the higher one was more so than the lower.   
  Their only explanation for the cause of my immediate post op problem of being out of it and poor response to what was going on was reaction to brain movement, as a scan was done and no bleeding.     Scary since I do remember going to x ray but not having the scan even being done.
 I am very fortunate that did improve fairly soon and go on to a usual recovery.               They said I should improve with the forgetfulness I do have.                          I don't have to go back for 6 mos and even get to go a year for MRI again.              I got a copy of my operative report  which is always very interesting.   
    Now wish my taste would come back right too.     Some foods aren't too bad,but many are.  I have lost 6# and wish it was more.   
           This makes me a postie no. 4.       Quad postie doesn't sound right so will have to think of a better way to put it.             I just really hope that this is it for surgeries!
            I am very happy to be as good as I am even with the usual AN after effects that so many of us have.                  I had so many prayers from so many of you and am sure that helped me so much!                                         Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

HeadCase2

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Re: 6 weeks
« Reply #1 on: May 29, 2008, 01:25:25 pm »
Hi Cheryl,
  I know you've had a rough time of it.  It's good to "hear" that you're doing better.  And extra congratulations on the improved hearing, that happens so seldomly.  I suggest that we call you a Quadrapostie, which sounds like some sexy design from Ferrari. :)
Regards,
  Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

leapyrtwins

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Re: 6 weeks
« Reply #2 on: May 29, 2008, 03:41:15 pm »
Cheryl -

thanks for the update.  It's amazing that much of your hearing has returned.  You must be delighted - and I am delighted for you  :)

I like Rob's suggestion of "Quadrapostie".  It sounds kind of sleek.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Brendalu

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Re: 6 weeks
« Reply #3 on: May 29, 2008, 03:45:11 pm »
Cheryl,
I am so happy for you!!!  You have given me more hope than you will ever know.  I know that with your attitude it will only keep getting better :) I like the Quadrapostie, it does sound like a sexy model of a very expensive car!!!
Hugs and best wishes,
Brenda
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

nancyann

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Re: 6 weeks
« Reply #4 on: May 29, 2008, 05:11:56 pm »
Cheryl:  this is THE BEST news ! ! !     I am so happy for you ! ! !

Always good thoughts,   Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
right facial paralysis
good to go.

Cheryl R

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Re: 6 weeks
« Reply #5 on: May 29, 2008, 05:22:10 pm »
Now Quadrapostie has given me a good laugh as being a plump middle aged  grandma  doesn't exactly fit the bill.          I'll take it though!              Hasn't Tony had more surgeries than that too and hopefully he can give us his number and make for a big time postie.
                                                     Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Raven

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Re: 6 weeks
« Reply #6 on: May 29, 2008, 07:23:43 pm »
Great news Cheryl!!!    I left the hospital after my second surgery just about totally deaf, a month later I had fluid drained from my good / right side and got my hearing back. So I was in the same place you were for a while...........NOT FUN AT ALL. Its good you don't need the cochlear implant, if you did that would make surgery # 5. Darn, now there will be nobody I can pester about cochlear implants........LOL

I will be watching your progress..............from one NF2er to another.

John
7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

sgerrard

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Re: 6 weeks
« Reply #7 on: May 29, 2008, 09:28:37 pm »
Quadrapostie,

I love to hear about people getting their hearing back. What a great development for you!

Let's see, we have postie, and post-postie, and post-toastie, and quadrapostie. Any others?

Steve
 
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: 6 weeks
« Reply #8 on: May 29, 2008, 10:19:35 pm »
Yes, I have decided that I am officially a "uni-postie"  ;)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: 6 weeks
« Reply #9 on: May 30, 2008, 07:44:52 am »
Hi, Cheryl:

Slightly belated congratulations on a successful surgery and much improved hearing!  I'm very pleased to learn that your hearing has returned to a very usable level.  These kinds of success stories are so refreshing.  Thanks for sharing yours with us and I hope you enjoy a rapid and total recovery as a 'Quadra-Postie' .  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

 


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