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Author Topic: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING  (Read 5463 times)

CROOKEDSMILE

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DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« on: March 06, 2008, 03:24:39 pm »
I JUST DON'T HEAR OF THIS MUCH. IT SEEMS LIKE ONCE WE GET THEM THEY ARE THERE TO STAY.
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nancyann

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETUR
« Reply #1 on: March 06, 2008, 05:14:53 pm »
Hi Crookedsmile:  I know that one of Dr. Byne's pts. had her gold weight removed, so yes, it does happen!!
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

lori67

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #2 on: March 06, 2008, 05:18:24 pm »
Yes, I have heard of it happening.  Didn't "4" have a temporary stick on eye weight that she no longer needs?  I know she said he had her blink back - but I don't know if that was with or without the weight.  I'm sure she can answer that - if she's not too busy trying to ride her bike across a highwire with no-hands - blindfolded.   :D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Joef

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #3 on: March 06, 2008, 05:29:48 pm »
I think most do! ..   the time is very variable ... from 1 to a few years...

I plan on making it a tie pin when its out !
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

nancyann

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETUR
« Reply #4 on: March 06, 2008, 05:37:32 pm »
I plan on cashing it in!!  what with the price of platinum (gold too)

Crookedsmile:  I was told by an eye surgeon that the gold weight may need to be changed every 5 years
because the weight can 'breakthrough' the eyelid.   He showed me a picture of a man it happened to.

I need to ask about the platinum, well, I have 5 years to ask....
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

linny

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #5 on: May 19, 2008, 05:34:43 pm »
 ::)  I had mine taken out and a nother one put i n higher up on my eye lid. (I think its alittle heaver too )  So maybe some people  are able to get them out and some not. I dont really care if its there or not.  Its all just missed up anyway.  :'(  Good luck to you getting it out.  Everyone on this site is GREAT !!!!!!!!!!!!!!!!!!! :)
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Linda-2yr post AN 3-cm left side.  OHSU hospital , slow recovery for me. But then I had to have 2 surgeries with complications swelling of brain,

leapyrtwins

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #6 on: May 19, 2008, 08:52:18 pm »
From what I've heard it does happen.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

TLC719

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #7 on: May 20, 2008, 01:02:47 pm »
Dr.Steenerson took my eye weight out in six months .It was alot of weight but I't got the job done.He gave me  the gold after removal.Now I have a gold front tooth.  Kidding-I went and bought some billy-bob teeth that had gold in one tooth&took the tothe Dr. visit and put them on right before he came in.It's hard to make him laugh but he smiled real big.  TLC
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Atlanta Ga.AN 2006 right paralysis,balance issues,SS deaf,just happy to be here!

er

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #8 on: May 20, 2008, 06:03:31 pm »
Hello CROOKEDSMILE,

I got my gold weight before I left the hospital ( on the 5th day ) and It was removed about 7 to 8 months later. And I had worn it around my neck for a few months I got a kick on peoples reaction on how did they do it on how could I wear something that big and heavy. Mines has 3 holes.
eve
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er

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #9 on: May 20, 2008, 06:06:37 pm »
Nancy,
I have a young woman that might want to talk to you and your experience.
eve
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nancyann

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETUR
« Reply #10 on: May 20, 2008, 06:18:43 pm »
Hi Eve:  I replied to your PM !   I would certainly 'talk' to her via e-mail (I have to rest my voice at night after talking all day at work b/c of my paralyzed right vocal chord - it's getting worse because it has continues to atrophy (shrink) since my AN surgery ~ 2 years ago).  PM me her e-mail address or give her mine.

Always good thoughts,   Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

TP

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #11 on: May 20, 2008, 08:48:43 pm »
I had a gold weight inserted into my eye in July 2006 and had it removed in October 2007. My eye blinks just fine. It is dry and I use eye drops now about once or twice a day.

I took the "eye" gold weight to a jeweler and made a gorgeous pendant necklace. I had an older men's gold ring with three diamonds and I had it melted down and then the piece that was in my eyelid with three tiny holes, I added my husbands, daughters and my birthstones. The diamonds are at the bottom of the pendant which gives a nice touch to the overall design.  It is very unusual and means a great deal to me.

The day I got my gold weight was one of the happiest days and the day I removed my gold weight was just about as happy!
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4+cmm left retromastoid of cerebellopontine angle tumor removed 6/5/06; Dr. Eric Gabriel, St. Vincents, Jacksonville, FL
Left ear hearing loss, left eye gold weight, facial paralysis; 48 year old female. Dr. Khuddas - my hero - corrected my double vision

sgerrard

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETUR
« Reply #12 on: May 20, 2008, 09:46:10 pm »
Quote from: TLC719 on May 20, 2008, 01:02:47 pm
Dr.Steenerson took my eye weight out in six months .It was alot of weight but I't got the job done.He gave me  the gold after removal.Now I have a gold front tooth.  Kidding-I went and bought some billy-bob teeth that had gold in one tooth&took the tothe Dr. visit and put them on right before he came in.It's hard to make him laugh but he smiled real big.  TLC

LOL. I would like to see a picture of you wearing them.  :D

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

er

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Re: DOES ANYONE EVER REALLY GET TO HAVE GOLDWEIGHT REMOVED DUE TO FUNCTION RETURNING
« Reply #13 on: May 21, 2008, 06:28:55 am »
Nancy
I've sent you 2 e-mails I am wondering if you have gotten them. one Sat and one today

eve
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