Hello out there
I've read quite a few of your posts and seems like a great support community.
I am having surgery on 5/23 at Beaumont Hospital in Royal Oak, MI. After doctor shopping, we liked them the best.
My history is unique in that I've had 2 gamma knife treatments- 12/99 and 9/06. The doctor who did those treatments says this can enlarge up to 2 years after GK but is NOT growth. He is not recommending surgery and is the lone voice out there that says that. All the others are surgeons, so their bias is towards surgery.
The problem is, nobody can tell growth from swelling. This thing has continued to 'enlarge' since the 2nd treatment nearly 2 years ago (9/06) and is compressing my brainstem. I am going with the surgery as I am afraid if this continues to enlarge that will make the surgery harder (or so the surgeons say) and I run the risk of added complications from surgery.
The surgical plan is to do the sub occipital approach and debulk the tumor--that is get as much as possible without damaging the facial nerve. That of course is risky as the tumor could grow again.
Is there anyone out there who has had GK and then had surgery? If so, what was your experience?
What are your tips for pre op and post op? What would have helped you be more comfortable? What is the worst thing?
Who out there has experience with BAHA? Should I get it implanted the day of surgery or wait a few months?
Any tips would be most appreciated. I'm feeling pretty confident about this and envisioning the best outcome.