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Author Topic: An Acoustic Neuroma Christmas  (Read 45490 times)

Sue

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Re: An Acoustic Neuroma Christmas
« Reply #30 on: December 17, 2008, 05:15:33 pm »
ooo, I'm sooooo glad I actually REMEMBERED something!  I'm happy to drag this out of the bottom of the barrel so that everyone could enjoy this again, or see it for the first time.  Steve probably wouldn't have done it, shy, retiring, modest man that he is!  ;)

Sue in Vancouver
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

fbarbera

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Re: An Acoustic Neuroma Christmas
« Reply #31 on: December 17, 2008, 05:21:40 pm »
Brilliant Steve!
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msmaggie

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Re: An Acoustic Neuroma Christmas
« Reply #32 on: December 17, 2008, 05:36:56 pm »
What great fun that was!!  You really hit the humor button on that one, Steve!
Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

NL

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Re: An Acoustic Neuroma Christmas
« Reply #33 on: December 17, 2008, 06:05:01 pm »
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1.6 cm left AN diagnosed Oct. '07
1.9 cm on 2nd MRI, May '08
Retrosigmoid surgery at House Clinic/St. Vincent's on 8/6/08
(no post-op dizziness, nausea, facial or balance issues)
Thankful for a fantastic team of doctors - Dr. Rick Friedman, Dr. Marc Schwartz, & Dr. Michael Stefan

wendysig

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Re: An Acoustic Neuroma Christmas
« Reply #34 on: December 17, 2008, 07:33:58 pm »
Steve,

I loved your poem -- it was hilarious --thanks for the laugh! You truly are multitalented!!!   Wishing you a great Christmas/Hannakah and a Happy and Health New Year!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Dog Lover

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Re: An Acoustic Neuroma Christmas
« Reply #35 on: December 17, 2008, 10:01:58 pm »
OMG that was funny! I think that one is a "printer" to hang in my cube. No one but me will know what the heck it means though.

Cathy
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Cathy
9mm x 3mm Left Side AN
Mid Fossa Aug. 21, 2008
Dr. Gantz / Dr. Woodson
Univ. of Iowa Hospitals and Clinics
No facial issues, hearing saved, I keep active and feel back to normal.

sher

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Re: An Acoustic Neuroma Christmas
« Reply #36 on: December 17, 2008, 10:32:15 pm »
That was such an AWESOME poem. You are the light at the end of the tunnel for me today.
Thanks!
Sher
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1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling

Dan

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Re: An Acoustic Neuroma Christmas
« Reply #37 on: December 18, 2008, 01:48:39 am »
Steve,

Yesterday, I bought a Christmas tree and decorated it, and today I read your poem.  Christmas can come now I've got the Christmas Spirit.

THANKS

Dan in Germany 
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US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany

Pooter

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Re: An Acoustic Neuroma Christmas
« Reply #38 on: December 18, 2008, 08:02:01 am »
Bravisimo!  *clap*clap*clap*  I LOVED it!  Good job!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Captain Deb

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Re: An Acoustic Neuroma Christmas
« Reply #39 on: December 18, 2008, 08:54:27 am »

"Your Poem totally rocks!!!!"

                                                                                 --Santa


Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

leapyrtwins

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Re: An Acoustic Neuroma Christmas
« Reply #40 on: December 18, 2008, 11:02:05 am »
Quote from: NL on December 17, 2008, 02:51:21 pm
Yes, Sue...thanks for reviving this holiday gem! There are quite a few of us that missed it the first time around!

(Jan - I like the Christmas card fundraiser idea!)

Great job, Steve!  :D

Nancy


I dropped the ball here; never did bring this to the attention of the ANA.  Perhaps we can ask about making it into a Christmas card for next year.  Phyl, you're got influence with the "powers that be".  Can you help us out here?

Glad Sue thought enough to "resurrect" this post from last year.  IMO we don't need a new rendition each year; this one will do quite nicely.

Many thanks, Steve  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Sue

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Re: An Acoustic Neuroma Christmas
« Reply #41 on: December 18, 2008, 11:49:10 am »
Yep, why mess with a "Classic"?

Sue in Snowy Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

GRACE1

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Re: An Acoustic Neuroma Christmas
« Reply #42 on: December 18, 2008, 12:35:36 pm »
Thank you so much for the laughs.  That is a classic for us ANers.  Bring it back yearly.  Great job!!!

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

MAlegant

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Re: An Acoustic Neuroma Christmas
« Reply #43 on: December 18, 2008, 06:54:44 pm »
Steve,
That's hilarious---and I'm Jewish!   ;D ;D ;D
Many thanks for these and previous laughs.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

sgerrard

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Re: An Acoustic Neuroma Christmas
« Reply #44 on: December 20, 2008, 11:58:51 am »
Thanks again everyone for the kind words, and thanks Sue for reviving the poem. I did have an email exchange with the ANA director last January about putting it in the Dec 2008 newsletter. I guess it got lost in the shuffle since then, with the recent newsletter mainly focused on the big conference next summer. The main thing is that it is here for all our forum friends.

Happy Holidays to all.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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