I'd just like to thank that you'll all a wonderful group of people taking time out to answer questions like mine and others.
Even though I've not talked to any specialists yet (my ENT dr. is scheduling an appt with HEI and I'm communicating with Dr. Chang at Stanford), I'm thinking about the 2 options all the times. Should I do the surgery or the CK...
I hope after talking to both, the answers will become clear.
I can see that Lorenzo indicated that he was treated with CK by Dr. Chang and so was Mark. Both are happy. Lorenzo, is there a story that you have written about your experience somewhere such as Mark's that I can read? If not, can you give me details of your experience?
1. Also, when I talk to the Dr. at the HEI, what kinds of questions should I ask? Also about the CK compared to, I guess, probably their recommended way which is surgery?
2. May be this is too early to ask, but why would one choose CK over surgery and vice versa? Please give me your reasons why you choose one over other.
3. What are the success rates of CK compared to surgery and how long has CK been around? where can I find such information?
4. In my case, the AN seems to cause some ache inside, how can CK eradicate the pain and problem with fullness since the tumor is still there and may still interfere with the other things in proximity?
Sorry some of these questions may be stupid and if you know a source where I can find these answers please point me to them.
I talked to a few people already with AN and all of them had surgery done, none that I know had CK. This could be because they had them done few years ago when CK was not popular. However, all of them seem to be doing OK. In fact, my manager had it done 9 years ago at HEI and I talked to him today. He went over his experiences. He said that right after he had the surgery, for 2 days his left face was numbed but was OK after a few days. He could not walk straight for 2 weeks and needed a walker to help him around the house. For about 1 year, he had some balance issue but only during bowling. But now, he is perfectly normal, except the tinnitus has never gone away which he is used to anyway and he used that ear when his wife complained something to him and it is useful, he said (he was joking of course
Anyway, thanks for all those who has replied and those who will reply to my questions.
I'll keep you all posted on my journey and will of course ask questions as I go along.