So,,,I had my final round of CK yesterday.. I had three treatments an hour or so each....only major side effect so far is slightly sore roof of mouth,,,,and bad taste..yuckkkkk...Mario the tech said it is due to my smell sensory nerve being hit,,and for those of you with an AN..will probably not experience it...remember,,I have to be different...lol
ANyway....Overall , I have not had effects of decadron other than no sleep..but I have been insomniac for years..so really no big change...and my ear canal is a little swollen..I know my sinuses are slightly swollen from treatment which pushes on my estachean tube..had same effect after actual surgery and this so far comparatively is no sweat....I am hoping that even three months from now..this is all I will experience other than having the tumor die verses. "long term growth control" after all,,they cut off all most all of the blood supply during surgery in two different manners, it is already partially calcified etc...so am keeping my fingers crossed. I went to the CK center in Palm Beach...everyone was nice..would have liked to know a little bit more of what to expect from proceedure but I think they thought I knew all about it as I have been pariticipartory since Jan.....but no biggie...lie on a table for an hour..not too hard if you know what I mean....no pins,,no needles etc.
For the most part,,I was a little tired here and there,, but am also fighting a cold so it may have nothing to do with the actual CK....
I do beleive I may lose a spot of hair on the back side of my head as I could actually feel it burning me....they had to stop once or twice to give me a little relief..but it is a small spot and if it occurs it should not be permanant, so whatever...my only concern now is what to expect in the next three months..but the Dr stated to me, that what I would feel in three months would be directly related to how I felt now..and so far...overall,,,not too bad and hope this will always be the worst of it....I will keep yall updated to progress,,but so far,,I was worried about the Keppra..no biggie..the decadron..so far so good....minimal effect but afterall..only on it four days....a little tired but may be due to travel and cold...one wierd thing,I actually got a sunburn on my face but figure it is actually better than actual sun damage,,and I am already tan rather than burned like if I went to the beach.....one heck of a way to get a tan on my face...but remember,,my tumor is a little different than an AN....so, at the moment happy with decision and really glad I went with CK vs Gamma, novalis,,peacock etc.....Dr Spunberg is great,,and his associate is very knowleagable..so feel I have the best chance..thanks for everything