I am one of those "crazies" that flew to SFO from Chicago to be treated by Dr. Chang. My reasons (to go that far): he is one of the most experienced and knowledgable surgeons that does both micro- and radiosurgeries. It happened to be very inexpensive to me (no, Iam not Paris Hilton in disguise
). I had to hide the real reason to fly for my son who had to go with us (he wanted to see the ocean so we made it look like this is the reason we go there). Otherwise I would go to OKC or Palm Beach (FL) see www.cyberknifesupport.org
which has 2 absolutely wonderful docs. answering questions about GK and CK in particular). My insurance paid for the treatment
I asm not sorry I went to see Dr. Chang, who is very passionate about his job, has an extensive experience regardless his relatively young age (he is not exactly a teenager, he is just young for a very experienced neurosurgeon). I loved the team that worked with him and the weather in SFO is better than Nov. in chicago
. I keep in touch via e-mail but for time being I had rather minor issues to discuss with Dr. Chang. My MRI will be in May and I am going to send A CD to SFO for evaluation. My life was not affected by the treatment (so far) and I'm happy with my decision (so far).
Now, my AN was 2cm. when treated with CK. I don't know if my decision would be the same if it was larger. If I went surgery way I think I would stay closer to home as follow up is usually more intense due to incision, bigger possibility of CSF leak and other stuff that is possible with craniotomy.
We are sorry you had to join our club but since you were kind of forced to join - welcome. People here are true life savers regardless of their choices of treatment. I am proud to be a member of this family.