Hi Annie,
I have been so busy lately and have not been on the board for a little while. Whoa! Lots of great posts that I missed. I need to get back to this to get my daily dose of "family" chat. Feels like we are so close with everyone sharing our AN journeys together. You know there are only a handful of us out there and we are just as close as a family can be.
I am so thrilled that you have Dr. Chang and Dr. Soltys!! And is Larry still there? And Elizabeth? Please say "hi" to them for me. They will remember Alex and his candy bowl... Aren't they the best we can ask for! I didn't tell you the story that Dr. Chang changed my first day of treatment to an earlier slot so that Alex could go to bed at his regular bedtime. Nicest bunch of most down to earth folks and yes, I feel like I am their babysitter also
. I just LOOOOOOOOVE them!!!
I notice your AN size is about the same as mine. We must stay in touch to keep posted. And, Mark - if you are reading, I have to say even the cafeteria food at Stanford Medical Center is awesome, wholesome and healthy! It's definitely a worldclass outfit. The CT building is like a hotel lobby with grand piano and the works!!! Just like a spa!
Yes, although progress of my 6-month is small but I am relieved to see the word "necrosis". So, Phyl, flier58, BevM, I am hopeful. Like Phyl said "day by day"... For those who are still considering treatment option, CK is my recommendation given the tradeoffs!!!
So, I made copy of the MRI CD and reports today after I came home from the hearing test. I will plan to send them to Stanford tomorrow. Hopefully I will hear the result soon. The only thing I am wondering is if the tinnitus will improve overtime and the hearing. Oh yeah the hearing. Now I tell people that I can't hear --- a perfect excuse to dismiss things that I really don't want to hear
.
Definitely missed chatting in the forum.
Mary
