Hi all -
Have been lurking for several months and have had appreciated alll the info. Have not done alot of posting as my left hand is uncooperative since surgery and typing is difficult.
My 6 month follow up MRI showed a tiny (3mm) facial neuroma on the right side. My acoustic neuroma was on the left side. The MRI report said "in hindsight" the facial neuroma was there on my first, pre-surgery MRI (6 mons. ago) also. All the research I've done says the definitive diagnosis for NF2 is bilateral acoustic neuroma, other types of neuromas not mentioned very often. Not much input from my surgeon, seems he wants to wait for the next MRI, which I will be having in a couple of months. I have also experienced leg/back pain, foot numbness for the past 3-4 years, which seems more threatening with NF2 possibly in the picture. Should I be asking for a spine scan ?
Would appreciate any input, info. I am 45, so I would probably looking at the less serious type ( Can't remember the names)