My name is Tim. I am 52 years old and I live in St.Petersburg,Florida. I was recently diagnosed with NF Type 2. I have had sciatic nerve pain for the past few months, so I had a lumbar/sacral MRI done Nov. 15. It showed 3 large tumors on my spine. A second MRI done Dec. 15th on my brain,cervicle,thorasic showed bilatteral AN's. I have had tennitis and gradual hearing loss for 17 years. I wear bilatteral hearing aids. The size of the AN's are 12 MMÃ‚Â on the left side and 3.3 X 2.9 CM on the right side. The tumor on the right side is so large it is pushing against my brain. I have a first appointment at the Moffitt Center in Tampa on Jan. 8th. I have been in a wheelchair full time for the past 6 years due to what has been diagnosed as a form of Muscular Dystrophy,which from reading various information the past month, I now have serious doubts whether I actually do have M.D. or are my neurological problems due to the NF type 2.
I am looking forward to being a part of this group. Any information you can share will be appreciated.