glad to help in any way I can (as with others here as well... and Mark, thank you!
As kbonner *blows kiss to katie* and JoeF *ok, blows him a kiss too!
* can share, we are forutnate to live in an area that offers so much without having to travel.
As Katie (as well as many others here, such as Crazykat and jcinma, etc) can note...
1.Ã‚Â MGH has a fabulous microsurgical team in McKenna and Barker. They have been doing numeorus AN surgeries with wonderful success.
2.Ã‚Â Ellenvig can share her experiences with Dr. Noren in Providence with Gammaknife radiosurgery. Tufts also offers Gammaknife
3.Ã‚Â I can share about Cyberknife radio-surgery at Beth Israel in Boston
4.Ã‚Â MGH also offers Proton radio-surgery
5.Ã‚Â Brigham/Woman's offers Novalis FSR radiosurgery and also has a fabulous brain tumor team, headed by Dr. Peter Black
We are fortunate to have so much here. Many, such as JoeF, our Capt'n Deb and many more, have traveled across the country to House Ear Clinic and as Mark notes, they are also a premier location for AN surgery. Skull Base Institute also does endoscopic AN removal.
My belief (whether right or wrong) is that doctors truly are realizing the treatment options available to many AN patients. As Mark notes, it also depends on the size of the growth.Ã‚Â MRI's are +/-2mm, and those 2 mm can make a difference.
Please see if your radiologist will re-read your reports, with specific notation of the growth's size. Then, you will be able to know what research needs to be done.
...and we will help you with that research, without you feeling overwhelmed. I have to admit that most here are very open minded about treating physicians, treatment options without saying "well, this one is better than that one". We can share experiences, outcomes, etc with you.Ã‚Â Read this forum and take your time in reading them. You will learn lots. Many of us are more than happy to talk on the phone as well.
Regardless, know that we will share with you what we can.... and know that you are not alone.Ã‚Â Please remember the most important thing (to me) about this AN journey... first, it is benign.Ã‚Â What a wonderful word. Benign... it just happens to be in a lousy spot but it's benign...... second... it is treatable.Ã‚Â I love that word too!
So, you have a benign, treatable growth... and we're here to help you during this process as best as we can.
Hang in there.