Ear pain

[mwatto]

I have had ear pain for close to 8 years (two before diagnosis which led me to the MRI finding) and it has persisted after treatment with CK. I have no other symptoms except this one. Its deep in that ear. It affects my sleep (wakes me during the night) and I cannot lie on that side for long. Audiologist, doctor looked and nothing to see (camera revealed nothing). My CK specialist and a neurosurgeon I saw for his opinion said its not common for AN. I am only taking CBD now and again for the pain. Does any one else have this? Sometimes the pain is behind that side eye but an opthalmologist I saw said nothing unusual going on. Unsure where to get help now.

[NYMIKE]

Hi Michele, while I don’t have persistent pain, I do occasionally get a sharp piercing pain in the VS ear that lasts for only a second or 2. This seems to happen about once every couple weeks and I’m not sure what the reason or trigger for it is. Is your ear pain always present or does it come and go?