Tumor increase

[UkulelesAreAwesome]

I had GK on 8/11/22. My one year MRI last year showed a stable tumor. I had an early MRI last week. It showed tumor increase in size. I meet with doctors tomorrow. What questions should I be asking them? I'm blindsided.

[mwatto]

My understanding is the first 5 years are response- swelling, shrinking etc - see Changs video. Definitely the first three years its unlikely regrowth. So try not to stress. Watch that video and maybe also chat to a member like Paul Wellen here who was told it had failed- but it was in fact pseudoprogression and he waited and it shrank again. Unless its pressing on a critical structure maybe consider waiting or even a steroid - chat to your specialist or get another opinion.

[UkulelesAreAwesome]

Thank you, Michele. It's been less than 2 years since I had gamma knife so hopefully it is just swelling. All I know until my appointment is that the size increased. Thank you for the advice. Where do I find Chang's video?

[mwatto]

Hi it is in the webinar library. If you look at my posts you may find a link or maybe ask Admin? For me it was very useful a few years ago...

[UkulelesAreAwesome]

Thank you. My doctors seem to think the size increase is more than swelling. I have another MRI in 6 months. The tumor is touching the brainand brain stem now.