Author Topic: How long after SRS for the first MRI follow up  (Read 332 times)

DanFouratt

  • Jr. Member
  • **
  • Posts: 79
How long after SRS for the first MRI follow up
« on: February 21, 2024, 08:53:25 am »
I have a question for those who had SRS and their first follow up.  My 6 month was scheduled for the end of March.  I have opted for open heart surgery (yes it has been a bad year).  I cancelled my follow up and told them why.  I want to recover.  Please note the recovery time is similar to a surgical recovery for an AN.  She rescheduled the MRI for less then 21 days post Open Heart Surgery.  I will not be driving by that time and plan on cancelling that one, with a recommend follow up.

How long have some of you waited for the first follow up?  I have read some people are doing it at a year.  I also have read that if the tumor grew it is attributed to the radiation treatment.  If it shrunk fine.  Regardless we will wait and watch and do another MRI in 6 months. So how beneficial is the six month follow up?

I have reached out to some in the medical world but would like to know real world stories.

Thanks

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

mwatto

  • Sr. Member
  • ****
  • Posts: 401
Re: How long after SRS for the first MRI follow up
« Reply #1 on: February 22, 2024, 03:50:47 am »
I have mine done once a year no contrast (including first follow up- mine did not swell btw) But see Dr Chang video as he mentions can wait a bit longer. I feel if no new symptoms then not urgent. I am surprised that at 5 years my latest consult specialist said I must continue to have yearly...
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

  • Jr. Member
  • **
  • Posts: 79
Re: How long after SRS for the first MRI follow up
« Reply #2 on: February 22, 2024, 06:02:58 am »
Michelle,

What time frame was the presentation by Dr. Chong. I tried to find it and failed.

Thanks

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

mwatto

  • Sr. Member
  • ****
  • Posts: 401
Re: How long after SRS for the first MRI follow up
« Reply #3 on: February 23, 2024, 10:04:36 pm »
Hi Dan
You need to login and its in the Webinar library under Cyberknife. https://www.anausa.org/members-portal/webinar-library/796-cyberknife-radiosurgery-for-acoustic-neuromas
« Last Edit: February 23, 2024, 10:09:51 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

DanFouratt

  • Jr. Member
  • **
  • Posts: 79
Re: How long after SRS for the first MRI follow up
« Reply #4 on: February 24, 2024, 04:34:25 pm »
Got it and thanks,

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled