Well the time for my radiation is finally approaching and I'm not supper thrilled about it. Mostly nervous about the possibility of facial weakness.
A little summary: Had a 3cm ish AN removed by surgery in 2011 at Mayo (I was in my mid 20's). At the time I had delayed facial weakness that came on a couple weeks after surgery and lasted for a month or so. Also had very bad headaches for years and still have them but less often. Lost hearing in AN side. But besides that, everything seemed to go pretty smoothly.
The tumor has been regrowing for a while now and was about 2cm at last check (6 months ago). I have opted for radiation at Mayo opposed to another surgery. I am most nervous about the possibility of facial weakness or facial movement issues. I was told that the previous delayed weakness makes me more susceptible to facial weakness from the radiation, which makes me very nervous.
This might be a question for people that have gotten facial weakness from radiation, but I am wondering how soon after radiation did people start seeing it effects of it? Is this typically very soon after, or something that progresses over a longer period of time?
I have read a few stories here and there from this forum from people process of radiation, and that has been nice. But any additional suggestions or advice for the community members that have gone through Gamma Knife is very welcome.