Author Topic: Tinnitus after Radiation  (Read 846 times)

DanFouratt

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Tinnitus after Radiation
« on: August 15, 2023, 03:19:26 pm »
I have read in a couple of places that tinnitus can be "worse" after radiation treatment. I am wondering if anyone has experienced this. I have it now and I find it more annoying then the hearing loss.  I have loss my hearing already.

Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

mwatto

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Re: Tinnitus after Radiation
« Reply #1 on: August 16, 2023, 02:02:20 am »
I had no tinnitus before or after radiation (did have after vaccine and after covid for a bit) am 4 years out still no tinnitus. I do take melatonin and have read this helps. I also listen to music all day - and white noise at night. Had CK 4 years ago 2019. My hearing good ditto for balance.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: Tinnitus after Radiation
« Reply #2 on: August 26, 2023, 01:20:14 pm »
Dan, I developed tinnitus along with my hearing loss, and I have never had radiation.  I think it's tied more to hearing loss than to radiation.  If you have hearing loss after radiation, you are more likely to have tinnitus.  Of course, the same thing is true for surgery: if you lose your hearing after surgery, you are more apt to have tinnitus.  Mine is constantly there, but I have learned to ignore it most of the time.
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

DanFouratt

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Re: Tinnitus after Radiation
« Reply #3 on: August 30, 2023, 11:34:50 am »
Thank you for your feed back.  I have decided to go with radiation.  I current have hearing loss and tinnitus, so nothing to fear. 
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

donjehle

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Re: Tinnitus after Radiation
« Reply #4 on: September 02, 2023, 07:46:24 pm »
It looks like it's scheduled in less than two weeks.  Please keep us posted on how it goes!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

DanFouratt

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  • Posts: 61
Re: Tinnitus after Radiation
« Reply #5 on: September 03, 2023, 09:55:49 am »
Thanks and I will let you know.
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled