Author Topic: New therapies for VS  (Read 108 times)


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New therapies for VS
« on: May 25, 2023, 01:27:06 pm »
Came across this. Forgive me if someone already posted this. Mwatto usually finds this type of info. long before I do.


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Re: New therapies for VS
« Reply #1 on: May 25, 2023, 07:13:52 pm »
Thank you for sharing this, notaclone13.

Even though this paper was released more than a year ago, I don't remember seeing it.  It is encouraging to know that some are exploring pharmaceutical approaches which some day might be of benefit to us.
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.


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Re: New therapies for VS
« Reply #2 on: June 01, 2023, 03:16:34 am »
Thank you for sharing this! I always hope that others are also looking answers too. Even though I have been treated I am always hoping that something will come along in the future for us!
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85% balance seems ok.