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Author Topic: Bevacizumab effective  (Read 326 times)

mwatto

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Bevacizumab effective
« on: August 06, 2023, 06:56:48 pm »
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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85% balance seems ok.

PBFight4SB

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Re: Bevacizumab effective
« Reply #1 on: August 28, 2023, 10:40:00 am »
Can hearing be restored in NF2 who had surgeries on both sides and lost complete hearing?

I feel the nerves are still intact and only tumor has been removed.
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Cheryl R

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Re: Bevacizumab effective
« Reply #2 on: August 28, 2023, 11:35:35 am »
Can possibly do a cochlear implant.      AN intact nerve is needed.   Would not be hearing like was before.        Hopefully someone who has had it done can answer,
                                                            Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

PBFight4SB

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Re: Bevacizumab effective
« Reply #3 on: September 18, 2023, 02:34:42 pm »
Cochlear works only for Acoustic Neuroma (one of the ear's hearing is damaged). In this case, both side hearing is lost.

Surgeon said ABI but we are not 100% confident on it.
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