Author Topic: Bevacizumab effective  (Read 1482 times)

mwatto

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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

PBFight4SB

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Re: Bevacizumab effective
« Reply #1 on: August 28, 2023, 10:40:00 am »
Can hearing be restored in NF2 who had surgeries on both sides and lost complete hearing?

I feel the nerves are still intact and only tumor has been removed.

Cheryl R

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Re: Bevacizumab effective
« Reply #2 on: August 28, 2023, 11:35:35 am »
Can possibly do a cochlear implant.      AN intact nerve is needed.   Would not be hearing like was before.        Hopefully someone who has had it done can answer,
                                                            Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

PBFight4SB

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Re: Bevacizumab effective
« Reply #3 on: September 18, 2023, 02:34:42 pm »
Cochlear works only for Acoustic Neuroma (one of the ear's hearing is damaged). In this case, both side hearing is lost.

Surgeon said ABI but we are not 100% confident on it.

Feroz

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Re: Bevacizumab effective
« Reply #4 on: October 02, 2023, 12:37:16 pm »
Hello

I have been diagnosed incidentally with a right VS it is on my inferior vestibular nerve less than 2mm and been there for the last 10 years (now 33). No changes since then at all. no other schwanomma or lesions.

Could I be having NF2?

Thank you