Author Topic: 4yr MRI CK Update  (Read 1307 times)

mwatto

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4yr MRI CK Update
« on: March 08, 2023, 01:22:50 am »
So incredibly happy! My AN has again shrunk. Right down now to 12mm,12mm, 10mm (was on 2cm 4 years ago). My specialist called me said the CK working well as he expected. No cystic degeneration after fisrt CK session that was gone. All normal despite my stabbing ear pains...he thinks could be an irritated nerve or even TMJ as I had this even before treatment. The trigeminal nerve is normal. My hearing in that ear is 85% on audiology report.
« Last Edit: March 23, 2023, 07:34:11 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: 4yr MRI CK
« Reply #1 on: March 08, 2023, 03:49:03 am »
That is awesome news Michele!!! Amazing shrinkage results, so glad things are tracking so well for you .
Stella x
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

bri-82

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Re: 4yr MRI CK
« Reply #2 on: March 08, 2023, 08:54:24 am »
Congrats! That is a big deal! I hope things continue work out well for you.

~BM
4.5 cm Right AN.
Sub-occip. Surgery 2011 @ Wash. Hosp. Center
Gamma Knife 2012 @ Wash. Hosp. Center
Translabrythine Surgery 2017 @ Johns Hopkins
Cyber Knife 2022 @ Johns Hopkins
Sub-occip. Surgery 2023 @ Johns Hopkins

mwatto

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Re: 4yr MRI CK
« Reply #3 on: March 08, 2023, 06:37:38 pm »
Thanks Stella and Bri-82. I am very grateful
I was very worried (had to take a valium) for the results as I have had a lot of ear pain at night still and I have still got vaccine related issues so I had all these worst case scenarios in my head worrying.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

gbly

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Re: 4yr MRI CK
« Reply #4 on: March 09, 2023, 11:16:53 am »
FANTASTIC news and congratulations!  You deserve the good news and keeps us all going as well.

GB

mwatto

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Re: 4yr MRI CK
« Reply #5 on: March 09, 2023, 07:38:44 pm »
Thank you so much GB! Yes am very very happy! I feel on some level what I am taking is helping, so I keep reading on the pathways involved.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

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Re: 4yr MRI CK
« Reply #6 on: March 17, 2023, 05:46:18 pm »
You are on the right path, Michele!  Thank you for sharing that fantastic news!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: 4yr MRI CK
« Reply #7 on: March 17, 2023, 07:34:09 pm »
Thank you Don! I do think keeping low stress, good sleep, and a few target supplements are helping.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing