Author Topic: New drug therapeutics for schwannomas  (Read 224 times)


donjehle

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Re: New drug therapeutics for schwannomas
« Reply #1 on: November 19, 2022, 12:37:50 pm »
Thank you for sharing that article.  I'm looking forward to further developments with this!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

drumfest

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Re: New drug therapeutics for schwannomas
« Reply #2 on: November 20, 2022, 03:52:43 pm »
Thank you very much for sharing this article.  Please post updates if you're able.  Hoping this pans out for all in the AN boat!!!
Diagnosed 4/2022 L sided AN 1.2cm.  stuffiness/clogged sensation w/slight hearing loss but good WRS.  Occupation: Professional musician.  No treatment yet

mwatto

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Re: New drug therapeutics for schwannomas
« Reply #3 on: November 25, 2022, 12:48:49 am »
Thank you for this - I check in mainly to get any therapeutic updates here - to learn. Still having nerve pain 4 years out - stabbing behind eye, throat, ear. Still cant sleep that side... I hate that I had no real choice at time- caught between rock and hard place.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.

SP

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Re: New drug therapeutics for schwannomas
« Reply #4 on: November 28, 2022, 10:39:35 pm »
Really interesting to see where this research goes to provide better options for all with AN tumors.
Thanks for posting!!!

Stella
2.3 x 2.2 Left AN (June 2022) @7yrs
2.9 x 2.9 (May 2020) @5yrs
2.9 cm (Mar 2019) @4yrs
2.9 cm (Aug 2018) @3yrs
3.1 cm (Aug 2017) @2yrs
3.2 cm (Aug 2016) @1yr
3.2 x 3.0 x 2.5cm Left AN (Aug 2015) ==> CK @ Stanford, August 17-19, 2015 (Drs. Chang & Soltys)

 


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