Author Topic: Hemifacial Spasms beginning 6 months Post CK in Jan 2022  (Read 13324 times)

UkulelesAreAwesome

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Re: Hemifacial Spasms beginning 6 months Post CK in Jan 2022
« Reply #30 on: May 26, 2024, 03:22:56 am »
I had gamma knife in August 2022. Around April 2023 I noticed minor twitching with my left eye and left side of my mouth. In 2024 I started to have facial spasms near the left eye, left cheek, left side of my mouth, and below the mouth on the left side. It's worse in the morning. Brushing my teeth aggravates it. Tension in my neck and shoulders aggravates it. Too much physical activity makes it worse. I have not been prescribed anything for it. Botox was mentioned if it continues. I've found it helpful to use an icepack on my head and neck. I also noticed the use of a TENS unit has been helpful. If I place the electrode pad on my shoulder it seems to help a lot and it's either relaxing the muscle or affecting the nerve. It seems to help decrease spasms. I have not found anything that helps with the increased head pressure or increased tinnitus.

mwatto

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Re: Hemifacial Spasms beginning 6 months Post CK in Jan 2022
« Reply #31 on: July 01, 2024, 03:36:03 am »
I have found magnesium with a tiny bit of taurine powder (tip of the scoop in it)  helps my eye twitches- also a warm compress. I feel my eye twitches may be dry eye related.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

CK2023

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Re: Hemifacial Spasms beginning 6 months Post CK in Jan 2022
« Reply #32 on: November 26, 2024, 03:13:58 am »
I feel like taurine is the solution for my facial spasms. I take 1 gram as soon as I wake up, if I don't they will start within 20 minutes.  I take another gram in the afternoon.