Author Topic: Has anyone had a PET scan  (Read 7567 times)

kjmema

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Has anyone had a PET scan
« on: November 30, 2006, 10:20:13 pm »
My sister has been doing research for me and said something about getting a PET scan.  I looked it up on line and see it is a  type of scan where they inject radioactive material.  Has anyone had this and is it necessary for AN diagnostic clarification?  K.
left side AN 3mm IAC watch & wait hearing 100% balance slightly off

Obita

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Re: Has anyone had a PET scan
« Reply #1 on: December 01, 2006, 06:32:18 am »
I have not heard of anyone getting a PET scan for an AN. 

It will be interesting to hear what others know about this............
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

HeadCase2

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Re: Has anyone had a PET scan
« Reply #2 on: December 01, 2006, 07:39:25 am »
  The accepted test for diagnosing Acoustic Neuroma is an MRI with contrast. The An tumor stands out quite readily, once the contrast has been injected, as a glowing white mass.  Search for MRI on this forum and you can see a few MRI's with An that people have posted.
Regards,
 Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

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ppearl214

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Re: Has anyone had a PET scan
« Reply #3 on: December 06, 2006, 10:27:16 am »
Hi Karen,

I've had a PET Scan for another medical ailment..... as Headcase has noted, MRI with contrast is the preferred method of radiology for AN's.  PET scans, from my understanding, would not be as effective in looking at the AN.  Hope that helps.

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Dealy

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Re: Has anyone had a PET scan
« Reply #4 on: December 06, 2006, 11:30:03 am »
Do not know why you would be opting or looking at a PET scan when MRI has been proving the effective tool for finding an AN. The only thing that excludes an MRI if you have some sort of metal in your head from prior surgery etc. Then the next best is a CAT scan. Ron

nancyann

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Re: Has anyone had a PET scan
« Reply #5 on: December 06, 2006, 11:44:02 am »
I've got titanium in place of bone they took out for AN surgery.  My neurosurgeon said titanium doesn't interfere with MRI's (I had 1 MRI 1 day post op & no problem) or airport metal detectors (haven't checked this one out yet, can't wait to see what happens!!)

Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Dealy

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Re: Has anyone had a PET scan
« Reply #6 on: December 06, 2006, 12:09:26 pm »
Nancy_Ann. I had logged off computer at work to have my lunch when I saw your post about MRI's. I hope I am not a source of misinformation to people. I was always told that any metal forbids use of an MRI. I am in contact with another NF2 who got a Cochlear Implant in one ear-and she can no longer have MRI's. However she had FSR in bith ears 5 and 6 years ago and both show they are in their death throes. In other words their dead-her ANs._Both of them. Anyway she can not have anymore MRI's but can have CAT scans. Ron. This is off the subject of the original post-but I just do not want to post misinformation. I think sometimes we can enough of that from some doctors you have too deal with. Ron

nancyann

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Re: Has anyone had a PET scan
« Reply #7 on: December 06, 2006, 12:16:03 pm »
Hi Ron: I always thought any metal in head & MRIs are a no-no also, but who knew about titanium?
I was so in the dark re: AN surgery (only recently got a computer, didn't know about this site till after surgery, unfortunately for me).
I didn't even know they put titanium in place of bone till I got a copy of my surgery report,  that's when I asked the doctor about it & he said titanium is MRI & metal detector friendly - he was right re: the MRI 'cause my head didn't hit the ceiling with the post-op one (thank God);  I've yet to try it at airports!!!
Best regards, Nancy
PS  Misinformation is my middle name!!!!
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

HeadCase2

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Re: Has anyone had a PET scan
« Reply #8 on: December 06, 2006, 01:19:46 pm »
 Titanium is not a problem for either MRI or CAT scans.  Any metal containing Fe (Iron) would be a problem for MRI, because it uses very strong magnetic fields. 
Regards,
 Rob
1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

nancyann

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Re: Has anyone had a PET scan
« Reply #9 on: December 07, 2006, 07:22:23 am »
AHAAAA!!!!!!(You guys are so smart, I love it!!)

So, does that mean I can wear my gold tiara next time I have an MRI??  lol
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis