I have been on W&W since 2017 when diagnosed with a 1.4cm x 6mm x 5mm AN in my left ear. My hearing loss has been stable with about 80% word recognition and I am thinking about a hearing aid. My only other symptoms are occasional vertigo that is primarily positional in nature, which has improved. My most recent MRI showed at 1.2 cm x 5 x 5 AN and with a new finding of a pituitary microadenoma. My neurologist ordered some blood work, which came back within normal limits, and recommended follow up in a year with another MRI and office visit. I saw an ENT at diagnosis and have a consultation with another ENT next week regarding the hearing loss. I also consulted with a surgeon by phone at the House Clinic. No one recommended any urgency to doing anything, although the House Clinic surgeon said my chances for a better surgical outcome and hearing preservation go down the longer I wait for surgery. However, I am 67 and not sure I want to go through a 7+ hour surgery that can result in more symptoms than I have now, even if I do lose more hearing.
It sounds like it is related to the growth pattern of your AN. If you wanted to consulted with House Clinic, you would need to send them copies of your CDs and any other relevant information. What is your current word recognition for hearing? Do you have a hearing aid?