Author Topic: NF2 clinical trial at MGH  (Read 9571 times)

Susan A

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NF2 clinical trial at MGH
« on: November 11, 2016, 01:53:59 pm »
Dr Plotkin at Mass General Hospital is starting a new Phase 2 clinical trial for people with NF2. The goal of this clinical research study is to learn if the study drug AZD2014 can shrink growing or symptomatic meningiomas.
2011 8 x 7 mm AN, & 20 x 22 mm M found, both on the left. Mosaic NF2 diagnosed. Some hearing loss
2014 hearing 30% on left, now using hearing aid (HA)
2015 Now have CROS HA - no longer hear enough for HA to be useful in AN ear
2016 Use an FM system on occasion at work to supplement HA


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20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85% balance seems ok.