Sorry for the delay. I am like richcooks in not going with GK. I did 3 doses of proton therapy over a week, with the mask. I had lost approx 50-60% of my hearing before, that is why I figured out something was wrong. I woke up one morning and had lost all of the hearing, scared me like nothing I had ever experienced. I was originally in a WW, but at the year mark, it had turned into a rapid growing AN.
After the radiation, I have lost some more hearing, I would say I have very little left, I do have a hearing aid and when it is in, I hear some, but once out, nothing. Might be somewhat dependent on the hearing aid, but not sure. I had some vertigo before the treatment, but none after. My face was fine, but about a month or so after, my nerve might have gotten stretched when the tumor swelled and then shrank. It is getting better with time, Sept. will be a year.
My 6 month MRI showed that the radiation worked and the tumor was dying. Dr. said come back in Feb for another. Steroids help with the face, and I know with time will get better and better. I look at is as a small price to pay. My blinking is the most obvious of something wrong, my eye's shutting in not synched. I do facial exercises to get it better or keep everything to kick in and work...
I hope that helps and keep us posted on what you are thinking. We are hear to listen and let you know what happened with us.
Left ear AN
.4 cm - April 2019
.7 cm - Aug 2019
1.7 cm AN - Aug 2020
Sept 2020 start 3 rounds of Proton Therapy
Total dose of 2100 cGy (centigray) in three separate doses of 700 cGy each.