Author Topic: Bio 30 proplois (or Bio 100)  (Read 3471 times)

mwatto

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Bio 30 proplois (or Bio 100)
« on: March 29, 2021, 09:49:47 pm »
Hi is anyone using this? Been a few years since this was discussed.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.

Clover131

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Re: Bio 30 proplois (or Bio 100)
« Reply #1 on: March 30, 2022, 06:35:11 am »
Yes- I just started it 2 weeks ago.

donjehle

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Re: Bio 30 proplois (or Bio 100)
« Reply #2 on: April 02, 2022, 06:30:53 pm »
What is it, Michele?  I have never heard of it before.  And I'm not sure where the previous discussion thread is.
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

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Re: Bio 30 proplois (or Bio 100)
« Reply #3 on: April 05, 2022, 01:29:13 am »
Hi Don it is propolis - it was used for trials in the past for vestibular schwannoma. Prof Maruto says it works on the PAK-1 pathway...however it was inconclusive re evidence it seems. I posted on Ivermectin also...
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.

donjehle

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Re: Bio 30 proplois (or Bio 100)
« Reply #4 on: April 05, 2022, 05:32:20 pm »
Hi Michele!

I have taken propolis before, not for my vestibular schwannoma, but just for general health and well-being.

Thanks for clarifying that for me!
Don
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

PBFight4SB

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Re: Bio 30 proplois (or Bio 100)
« Reply #5 on: May 02, 2022, 02:45:12 am »
NF2 patient here. Can you please elaborate the benefits? Ready to take whatever risk to get back some hearing OR at least suppress the tumor from further growth.

mwatto

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Re: Bio 30 proplois (or Bio 100)
« Reply #6 on: May 19, 2022, 08:12:46 pm »
Actually today I was reading this on Losartan:

https://pubmed.ncbi.nlm.nih.gov/34261799/

https://www.medindia.net/news/losartan-helps-reduce-the-risk-of-hearing-loss-among-vestibular-schwannoma-patients-202273-1.htm?fbclid=IwAR2OLH3muV-djGQvxzEQwhZOfJ9F6avDQug0BcX5HfQ7Jzmnxata9qIZo-w

I think that propolis works on the PAK-1 pathway which might help us- however a better bet is suforapane. Bromelain also useful.
Michele
20 x19x14mm AN diagnosed Feb 2019. Cyberknife .
Mri Oct 2019 showed shrinking to: 18x17x13 mm.
Mri Oct 2020 - no cystic components visible now. Slight shrinking, stable.
MRI 2021 stable no change
MRI 2022 stable no change.

 


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